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Long COVID Mild → no benefitIll for 3 yearsNeeds ongoing treatment

Long COVID with twitching, tingling and calf atrophy, no real change

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
Aug 2025
In their words
  • Condition: Long COVIDI think any time I get a virus it makes me feel weaker. But in my opinion it’s def virus related. In context ↗
  • At worst: MildYah, I’ve got a handful of other symptoms.. but nothing debilitating. In context ↗
  • Now: No benefitI think it makes a difference… but no real change, no real progression of anything. In context ↗
  • Began after: COVIDI think any time I get a virus it makes me feel weaker. But in my opinion it’s def virus related. In context ↗
Read from 10 of their posts and comments; links to the 8 this page draws on

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Summary

Dove 23739 has had long COVID since late 2022, with muscle atrophy in the calf and foot, twitching and tingling, visual snow, tinnitus and aching joints, though nothing debilitating. Vitamin D with omega-3, lion's mane, collagen and an antihistamine were credited with cutting most of the twitching; the atrophy did not improve. By August 2025 there was no real change or progression.

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What they tried

Their words about each treatment
  • antihistamine · HelpedI started an antihistamine 5 days ago, added a vit D + fish oil combo + turmeric and my twitching/tingling has diminished a good bit In context ↗
  • vitamin d · HelpedI take a vitamin d + omega 3 combo supplement and after 3 months in my system, it’s definitely helped In context ↗
  • fish oil / omega 3 · HelpedI just keep trucking along - I did uptake omega 3 and a lot of twitching subsided In context ↗
  • turmeric · Helpedadded a vit D + fish oil combo + turmeric and my twitching/tingling has diminished a good bit In context ↗
  • probiotic · Not saidI’ve been relying on a probiotic and a vitamin d/omega 3 combo. In context ↗
  • lions mane · HelpedI take lions mane and vitamin d every day and it has helped quite a bit In context ↗
  • collagen · HelpedI’ve been taking collagen for two weeks - every day and I’ve worked out twice and had no weakness after working out and significantly less twitches In context ↗
  • exercise / working out · WorseSometimes it feels like exercise makes it way worse In context ↗
  • magnesium · Not saidI take vit d in the morning and magnesium at night. I think it makes a difference… but no real change In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
late 2022long COVID symptoms began (twitching, tingling, muscle atrophy)Started late ‘22. All my tests are clean and normal. In context ↗Mild
September 2023antihistamine plus vitamin D, fish oil and turmeric cut twitching and tingling about 50%I started an antihistamine 5 days ago, added a vit D + fish oil combo + turmeric and my twitching/tingling has diminished a good bit (I’d say by 50%). In context ↗MildH1 antihistamines (unspecified)
December 2023lions mane and vitamin D over two months; about 99% of twitching and vibrating subsidedI take lions mane and vitamin d every day and it has helped quite a bit. ... it took 2 months for both this combo to kick in. But like 99% of my twitching/vibrating has subsided. In context ↗Mild
July 2024daily collagen for 60+ days; worked out twice with no weakness afterwards and significantly fewer twitchesI’ve been taking collagen for two weeks - every day and I’ve worked out twice and had no weakness after working out and significantly less twitches. In context ↗Mild
August 2025a handful of symptoms left but nothing debilitating; no real change or progressionYah, I’ve got a handful of other symptoms.. but nothing debilitating. ... I think it makes a difference… but no real change, no real progression of anything. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingmy twitching/tingling has diminished a good bit In context ↗
  • Muscle weaknessI think any time I get a virus it makes me feel weaker. In context ↗
  • Post-exertional malaiseSometimes it feels like exercise makes it way worse In context ↗
  • Vision problemsvisual snow, tinnitus, achy joints In context ↗

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