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ME/CFS Mild → relapsedIll 3 years before improving or writingNeeds ongoing treatment

ME/CFS for three years, back to normal then relapsed; depression leaves them unable

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
3 years
Last post
Feb 2018
In their words
  • Condition: ME/CFSI've been on Sertraline for 6 years and had ME for 3 years. In context ↗
  • At worst: Mildproceeded to have a terrible few months ... I'm currently about 50/50. In context ↗
  • Now: RelapsedThen about a year ago I collapsed in work (asleep) and proceeded to have a terrible few months. I'm currently about 50/50. In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Crane 25978 had ME for three years by January 2018 and had been on sertraline for six years, with long-standing depression since age 14. Two years earlier they were back to normal function, then about a year ago they collapsed asleep at work, had a terrible few months and were about 50/50. In February 2018 better sleep, less brain fog and little pain came, but depression left them unable to do anything.

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What they tried

Also tried

clinic in Wells· HelpedCBT· No changeSertraline· Not said
Their words about each treatment
  • Sertraline · Not saidI've been on Sertraline for 6 years and had ME for 3 years. In context ↗
  • CBT · No changeI did have CBT for mental health years ago, but it was a waste of time. In context ↗
  • clinic in Wells · HelpedSomerset here, have found my clinic in Wells helpful In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo18 mo2 y2.5 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
2015 (about 3 years before January 2018)ME onsetI've been on Sertraline for 6 years and had ME for 3 years. In context ↗Not stated
2 years before January 2018back to functioning as well as before, only occasional off days2 years ago I was back to functioning as well as I always had. The occasional off day but nothing major. In context ↗Near normal
about a year before January 2018collapsed asleep at work, then a terrible few monthsThen about a year ago I collapsed in work (asleep) and proceeded to have a terrible few months. In context ↗Moderate
2018-01-14about 50/50I'm currently about 50/50. In context ↗Mild
2018-02-02week of better days physically, but depression stopped them doing anythingI've had really good sleep, woke up feeling refreshed, had much less brain fog, and had nearly zero pain. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain foghad much less brain fog In context ↗
  • Pain & fibromyalgiahad nearly zero pain In context ↗
  • Anxiety & low moodI feel worse if I miss a few days of pills, but I generally struggle to not be suicidal anyway. In context ↗

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