ME/CFS
Outcome unclear
Lifelong chronic fatigue and breathing problems with ME/CFS, seeking sleep and airway care
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- whole life
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
I have been dealing with breathing issues and chronic fatigue my whole life
In context ↗ - At worst: Mild
I'm a nurse so I always thought my fatigue was due to work
In context ↗ - Began after: nothing they could name
I have been dealing with breathing issues and chronic fatigue my whole life.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A nurse in Los Angeles described lifelong chronic fatigue and breathing problems, which they had blamed on work until quitting. They saw sleep specialist Dr Rama for an assessment, sleep study and follow-up, finding it better than insurance-covered doctors, and were referred to an ENT and an airway orthodontist. They also described chronic mouth breathing, TMJ, a deviated septum, allergies and a small nose.
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What they tried
Also tried
Initial assessment, sleep study and follow up with Dr. Anil Rama· Not saidENT (Dr. Jerome Hester)· Not saidAirway orthodontist (Dr. Phelps)· Not said
Their words about each treatment
- Initial assessment, sleep study and follow up with Dr. Anil Rama · Not said
I did an initial assessment with him, sleep study, and follow up. It wasn't cheap
In context ↗ - ENT (Dr. Jerome Hester) · Not said
He recommended I see an ent in Menlo Park dr Jerome Hester and an airway orthodontist Dr Phelps and I go to all three of them, and I'm very happy
In context ↗ - Airway orthodontist (Dr. Phelps) · Not said
an airway orthodontist Dr Phelps and I go to all three of them, and I'm very happy
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | lifelong chronic fatigue and breathing issuesI have been dealing with breathing issues and chronic fatigue my whole life.In context ↗ | Mild |
| 2024-04-06 | under a sleep doctor, ENT and airway orthodontistI go to all three of them, and I'm very happy.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Breathlessness
I have been dealing with breathing issues and chronic fatigue my whole life.
In context ↗ - Pain & fibromyalgia
I've had tmj my whole life
In context ↗