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Long COVID Severe → somewhat betterIll 3 months before improving or writing

Long COVID with dizziness and breathlessness, now somewhat better

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
3 months
Last post
Dec 2022
In their words
  • Condition: Long COVIDI got covid early September then LC Early October In context ↗
  • At worst: SevereI couldn’t stand for more than a few minutes. All I did was sleep. In context ↗
  • Now: Somewhat betterI’ve been getting better quick, don’t wanna jinx it. In context ↗
  • Began after: COVIDI got covid early September then LC Early October. In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A 16-year-old male developed long COVID in early October 2022 after a third COVID infection in September, with dizziness, breathlessness, trouble swallowing and stomach pain; he could not stand for more than a few minutes, slept constantly and lost 50 pounds. By 21 December he reported slow improvement, saying he was 'slowly but surely becoming myself again', and on 22 December that he was getting better quickly, though not yet recovered.

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What they tried

Their words about each treatment
  • breathing · Not saidNot anything, I do breathing except every night and try to focus on the good things, like I said I’m not recovered but getting there In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered1 mo2.7 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
early October 2022long COVID onset after third COVID infectionI got covid early September then LC Early October. In context ↗Not stated
October 2022could not stand for more than a few minutes, slept and could not eatAfter that day I couldn’t stand for more than a few minutes. All I did was sleep. In context ↗Severe
2022-12-21slowly progressingI’ve been slowly progressing and I definitely see changes. In context ↗Moderate
2022-12-22getting better quickly, not yet recoveredYes! I’ve been getting better quick, don’t wanna jinx it. In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI’ve been in my bed forever from the POTS symptoms. In context ↗
  • BreathlessnessI felt short of breath and would get dizzy after blowing my nose. In context ↗
  • Sleep problemsAll I did was sleep. In context ↗
  • Gut problemsI couldn’t eat because of the dysphagia. ... My stomach would hurt In context ↗
  • Brain fogI had derealization. In context ↗
  • Anxiety & low moodI’m only 16 and ngl I was really scared. In context ↗

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