ME/CFS crashes too ill to function, now much better after somatic work and IFS
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 7 years
- Last post
- Sep 2024
In their words
- Condition: ME/CFS
Hell, just having ME/CFS is traumatic.
In context ↗ - At worst: Moderate
I'm sick, unable to function, unable to meet my service commitments
In context ↗ - Now: Much better
Somatic work along with IFS have weirdly made my symptoms much more manageable and less frequent and intense. I have even been able to keep up a good exercise routine without going into PEM.
In context ↗ - Began after: another virus
Mine was set off by a weird virus in 2017.
In context ↗
Summary
Dew 93238 has had ME/CFS-like symptoms since a weird virus in 2017, though never officially diagnosed. At their worst, crashes left them too ill to function or attend AA meetings. They were doing better by March 2023, and in 2024 intense trauma therapy, combining somatic work and IFS, made symptoms much more manageable and less frequent, so they could keep up an exercise routine without PEM.
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What they tried
Also tried
Their words about each treatment
- AA 12-step program · Not said
Yes, I've been sober in AA for 2.5 yrs.
In context ↗ - intense trauma therapy (somatic work) · Helped a lot
Somatic work along with IFS have weirdly made my symptoms much more manageable and less frequent and intense.
In context ↗ - IFS · Helped a lot
Somatic work along with IFS have weirdly made my symptoms much more manageable
In context ↗
Approaches: CBT & mindset · Trauma & somatic work
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2017 | illness set off by a weird virusMine was set off by a weird virus in 2017.In context ↗ | |
| — | crashes left them too ill to function or attend meetingsI'm sick, unable to function, unable to meet my service commitmentsIn context ↗ | |
| 2023-03-17 | doing better and able to keep up AA commitmentsLuckily I am doing better so I've double down on my program.In context ↗ | |
| 2024-09-15 | symptoms much more manageable and able to exercise without PEMSomatic work along with IFS have weirdly made my symptoms much more manageable and less frequent and intense.In context ↗ | Trauma work (EFT, EMDR, TRE) |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Even the stress and anxiety of "will my symptoms flare up and render me useless" alone can cause a crash.
In context ↗ - Pain & fibromyalgia
The pain, lack of understanding from friends, family
In context ↗ - Anxiety & low mood
But the fear is there that I'll crash again.
In context ↗
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