ME/CFS
Mild → no benefitIll for 3 months
ME/CFS with 10-13 hours' sleep and crashes after physical therapy, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 months
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
For 3½ months, I've been dealing with chronic fatigue
In context ↗ - At worst: Mild
I literally cannot do the things I was able to do before this fatigue started.
In context ↗ - Now: No benefit
which I'm on supplements now, but still tired all the time
In context ↗ - Began after: nothing they could name
When all this started, it was around the same time that I began physical therapy
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Eagle 79468 described 3½ months of chronic fatigue, sleeping 10-13 hours a day and crashing for hours after physical therapy. They cut back streaming from twice weekly to 3 days in March and one day so far this month, and also reported migraines, GI issues, nerve pain, temperature dysregulation, vasovagal syncope and chest pain. Bloodwork was normal except low vitamin D; a sleep study was pending and rheumatology declined the fatigue referral.
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What they tried
Their words about each treatment
- physical therapy · Worse
PT was never very strenuous, but two or three hours afterward, I would just crash and sleep for 4 hours
In context ↗ - vitamin D supplements · No change
my vitamin D is a little low, which I'm on supplements now, but still tired all the time
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| around January 2026 | chronic fatigue began around the time physical therapy startedFor 3½ months, I've been dealing with chronic fatigue...sleeping 10-13 hours a day.In context ↗ | Mild |
| 2026-04-21 | still fatigued, sleeping 10-13 hours a day, and streaming about one day a monthI literally cannot do the things I was able to do before this fatigue started.In context ↗ | Mild |
Adverse events
- Physical therapy / physiotherapy“two or three hours afterward, I would just crash and sleep for 4 hours...and even then, still be tired.” In context ↗ Made symptoms worse
Symptoms mentioned
Gut problemsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
two or three hours afterward, I would just crash and sleep for 4 hours
In context ↗ - Sleep problems
sleeping 10-13 hours a day
In context ↗ - POTS & dysautonomia
vasovagal syncope
In context ↗ - Heart symptoms & palpitations
occasional chest pain
In context ↗ - Temperature regulation
temperature dysregulation
In context ↗