ME/CFS
Mild → near normalIll 5 years before improving or writing
Brain fog, post-exertional malaise and poor sleep with ME/CFS, now almost back to normal
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 5 years
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
Five years ago today I was diagnosed with ME/CFS.
In context ↗ - At worst: Mild
At university I was dealing with brain fog, post-exertional malaise, and incredibly poor sleep
In context ↗ - Now: Near normal
I'm doing much better now, although I still experience occasional PEM and one particularly strange neurological symptom which affects my vision.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Developed ME/CFS at university, with brain fog, post-exertional malaise and very poor sleep, and was diagnosed five years before writing. During flares they logged symptoms in Bearable and their phone notes, but found the daily effort too much. They later studied Genomic Medicine at Oxford and built a health-tracking app for chronic illness. They said they were doing much better, though occasional PEM and a visual symptom remained.
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What they tried
Also tried
Their words about each treatment
- Bearable or Notes on my iPhone · No change
I think these apps are super useful resources, however they didn't work especially well for me...
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| at university | became ill at university with brain fog, PEM and poor sleepAt university I was dealing with brain fog, post-exertional malaise, and incredibly poor sleepIn context ↗ | Mild |
| 2026-08-01 | doing much better, occasional PEM and a visual symptom remainI'm doing much better now, although I still experience occasional PEM and one particularly strange neurological symptom which affects my vision.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still experience occasional PEM
In context ↗ - Brain fog
At university I was dealing with brain fog
In context ↗ - Sleep problems
incredibly poor sleep
In context ↗ - Vision problems
one particularly strange neurological symptom which affects my vision
In context ↗ - Gut problems
I would typically log fatigue, PEM, nausea, sleep, pain
In context ↗