Long COVID with POTS, breathlessness and brain fog, now nearly back to normal
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Dec 2022
In their words
- Condition: Long COVID
I had covid in 7/20 & have long covid still.
In context ↗ - At worst: Moderate
Even taking a shower was taxing!! I'd have to rest about 5/10 mins when I stepped out of the shower before I dried off
In context ↗ - Now: Near normal
within the last 6 months have finally started to feel like I'm getting back to some degree (85-90%) of normalcy ... I'm seeing progress ... my HR is coming down & not as high
- Began after: COVID
I had covid in 7/20 & have long covid still.
In context ↗
Read from 8 of their posts and comments; links to the 6 this page draws on
Summary
They developed long COVID after COVID-19 in July 2020, with double pneumonia, a seven-day hospital stay and two months off work. They had POTS, breathlessness, brain fog and a high heart rate. They improved gradually, reaching 85-90% of normalcy by 2022; by December their liver enzymes and kidney ultrasound were normal and heart rate was lower. POTS and breathlessness remained.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- time · Helped
I've improved in the last 2 years but it's not a sprint, it's a marathon.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| July 2020 | COVID-19 with double pneumonia; hospitalised 7 daysI had covid back in July 2020, before vaccines. I was hospitalized for 7 days (dbl pnuemonia)In context ↗ |
| 2020, after 8 weeks | returned to work after 8 weeks' FMLA; high heart rate on walking and showering required restI was on fmla for 8wks before I could return to work. Walking from the parking garage to my office had my HR in the 130's/140's...In context ↗ |
| August 2022 | reached 85-90% of normalcywithin the last 6 months have finally started to feel like I'm getting back to some degree (85-90%) of normalcy.In context ↗ |
| December 2022 | liver enzymes normalised, kidney ultrasound normal, heart rate lowermy liver enzymes have finally normalized since 7/2020 & my kidney ultrasound was normal 😊 I'm seeing progress...also my HR is coming down & not as highIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I've got it too although it's slightly improving for me finally.. I've had it for 2 years & 3 months.
In context ↗ - Breathlessness
I have POTS & the respiratory symptoms (shortness of breath) due to double pneumonia.
In context ↗ - Heart symptoms & palpitations
my HR when I move around is about 110ish & resting is around 88-94ish. My resting used to be 120-125!!
In context ↗ - Brain fog
I still experience some muscle twitching every now and then as well as some brain fog but it's mainly vocabulary words.
In context ↗
Ask Miruvor AI
Similar stories
-
Unable to walk around house with long COVID, much better after pacing and antihistamines
A Canadian man with long COVID for about three years was unable to walk around the house for the first two years, with constant migraines, brain fog and PEM. From year three, pacing, rest, stress reduction, H1/H2 antihistamines, hydroxyzine for sleep,…
-
Profoundly severe ME/CFS for about five years, now somewhat better but still severe
Dew 49079 was profoundly severe with ME/CFS for about five years, and once slept a week around the clock after overdoing it. They said they snapped out of it one day after five years, 'nothing I did', and have been out of the dark about a year, though it…
-
Bedridden for years with ME/CFS, now housebound and moderate after time and rest
A person with ME/CFS for six or more years was severe and bedridden for several years, then gradually improved to housebound and moderate. They credited time, rest and harm reduction rather than one treatment. Nicotine patches, microdosed psilocybin, pacing…
-
Bedridden with long COVID for three years, now nearly back to normal with time and pacing
Caught COVID in December 2019, before lockdown, and was mostly bedridden for three years as symptoms worsened. From year three she improved slowly, crediting time, rest, pacing, a gradual walking programme, daily antihistamines and gabapentin. A 2023…