Long COVID for going on four years, improved on maraviroc plus statin then relapsed
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 4 years
- Last post
- Dec 2024
In their words
- Condition: Long COVID
r/covidlonghaulers
In context ↗ - Now: Relapsed
I had a lot of improvement over the last 3 months on Patterson protocol but slid back after stopping.
In context ↗
Summary
Dune 10330 had been ill with long COVID for going on four years. Maraviroc plus a statin for 60 days brought noticeable improvement in fatigue and leg twitching; they later regressed slightly and got sick with a flu-like illness. The Patterson protocol gave a lot of improvement over three months, but they slid back after stopping and planned to restart.
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What they tried
What they credit
Their words about each treatment
- Marav · Helped
I took Marav/ statin for 60 days and had noticeable improvement in fatigue and twitching in my legs. ... I’ve since regressed slightly and gotten sick again
In context ↗ - Patterson protocol · Helped
I had a lot of improvement over the last 3 months on Patterson protocol but slid back after stopping.
In context ↗
Approaches: Antivirals · Statins
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| ~2021 | long COVID onset, ill for going on 4 years by late 2024Going on 4 years now tooIn context ↗ | |
| 2024 | noticeable improvement in fatigue and leg twitching after 60 daysI took Marav/ statin for 60 days and had noticeable improvement in fatigue and twitching in my legsIn context ↗ | Maraviroc (Selzentry) |
| 2024 | regressed slightly after getting sick with a flu-like illnessI’ve since regressed slightly and gotten sick again in between from a flu like somethingIn context ↗ | |
| 2024-12-31 | a lot of improvement over the last 3 monthsI had a lot of improvement over the last 3 months on Patterson protocolIn context ↗ | Maraviroc (Selzentry) |
| 2024-12-31 | slid back after stopping the protocol; planned to go back on itbut slid back after stopping. Going back on it I guessIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
twitching in my legs
In context ↗ - Flu-like symptoms
gotten sick again in between from a flu like something
In context ↗
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