Long COVID head pressure and spreading pain; vitamin D eased it, then symptoms returned
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- Jun 2025
In their words
- Condition: Long COVID
Doctors are saying it’s “post covid syndrome”
In context ↗ - At worst: Mild
I’ve had muscle pain, weakness, and twitching all of my body for 8 months
In context ↗ - Now: Relapsed
I went into remission for maybe 8 months to a year. Got sick again (not sure if it was Covid) and symptoms are back just like the beginning of the post.
In context ↗ - Began after: COVID
I had COVID December 15th with a terrible headache.
In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
Nightjar 18477 developed long COVID after a COVID infection in December 2022, with severe headaches that settled into head pressure, then spreading neck, arm and leg pain, muscle weakness and twitching. A vitamin D deficiency was found and high-dose vitamin D eased some pain for a while before it returned. After roughly 8 to 12 months of remission, a suspected reinfection in 2025 brought the symptoms back.
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What they tried
What they credit
Their words about each treatment
- anti biotics · Helped
gave me anti biotics which cleared the severe headache for the moment but left a permanent pressure in my head
In context ↗ - gabapentin · Worse
Dr. gave me gabapentin but it gave me made heart palpitations
In context ↗ - vitamin D · Helped
put me on 50.000 units of vitamin D. I’ve been on it now for roughly 2 months and some of the pain has been reduced
In context ↗ - light exercise · Worse
I’ve tried some light exercise but pay for it with more pain the following days
In context ↗ - Zinc, magnesium · Helped
Started taking vitamin D, Zinc, magnesium, and vitamin K2 for about a year now. My pain isn’t as bad but I’m still in pain everyday
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 15, 2022 | COVID infection with severe headacheI had COVID December 15th with a terrible headache.In context ↗ | Not stated | |
| late February / early March 2023 | pain spread to neck, pins and needles in armsthe pain moved into my neck and I started getting pins in needles in my armsIn context ↗ | Not stated | |
| mid-March 2023 | legs became weak with shooting painMiddle of March my legs became weak with shooting pain down my legs like cold water.In context ↗ | Mild | |
| July 2023 | vitamin D deficiency treated, some pain reducedI’ve been on it now for roughly 2 months and some of the pain has been reduced.In context ↗ | Mild | Vitamin D and sun exposure |
| December 2023 | pain returned despite normal vitamin D levelsI thought some of the pain let up but it just comes back and never stops.In context ↗ | Mild | |
| February 2024 | some overall improvementI can say I have had improvement though if this is truly long covid.In context ↗ | Mild | Vitamin D and sun exposure |
| June 11, 2025 | relapse after suspected reinfectionsymptoms are back just like the beginning of the postIn context ↗ | Mild |
Adverse events
- Gabapentin (Neurontin)“Dr. gave me gabapentin but it gave me made heart palpitations.” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
left a permanent pressure in my head
In context ↗ - Pain & fibromyalgia
my muscles all over my body, mainly my legs have been in pain and never stopped
In context ↗ - Muscle weakness
Now my legs are still weak and feel likes I’ve been working out but haven’t, same for my arms.
In context ↗ - Neuropathy & tingling
I started getting pins in needles in my arms
In context ↗ - Anxiety & low mood
been depressed for a year now
In context ↗ - Post-exertional malaise
I’ve tried some light exercise but pay for it with more pain the following days.
In context ↗
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