ME/CFS
Very severe → no benefit
Very severe ME/CFS, crashing from eating and toileting, still not recovered
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I didn’t know it was ME so I went to grad school and became very severe and haven’t recovered.
In context ↗ - At worst: Very severe
I didn’t know it was ME so I went to grad school and became very severe and haven’t recovered.
In context ↗ - Now: No benefit
I have maybe improved 1% from it and a little bit from Mestinon too.
In context ↗
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Falcon 88471 had chronic pain from tick-borne illnesses before one dose of an SNRI, started two weeks after stopping an SSRI, brought migraine, a fragrance allergy, sunlight intolerance and mild ME. Unaware it was ME, they went to grad school and became very severe, earlier this year crashing from eating and toileting, and had not recovered. LDA had given maybe about a 1% improvement and Mestinon a little too, with no side effects from the LDA.
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What they tried
Also tried
Their words about each treatment
- LDA · Helped
I am on around 0.5mg lda right now ... I have maybe improved 1% from it
In context ↗ - Mestinon · Helped
I have maybe improved 1% from it and a little bit from Mestinon too.
In context ↗ - Ativan · No change
Ativan, naproxen, mestinon. Nothing has shifted mine much though
In context ↗ - Sertraline (Zoloft) · Not said
I did get mild serotonin syndrome from one pill of a different SSRI, Zoloft.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | ME onset after one dose of an SNRI started two weeks after stopping an SSRIOne dose gave me a fragrance allergy, sunlight intolerance (pain), chronic migraine, and mild MEIn context ↗ | Mild | |
| — | became very severe during grad school and has not recoveredI didn’t know it was ME so I went to grad school and became very severe and haven’t recovered.In context ↗ | Very severe | |
| 2026-10-15 | still very severe; LDA and Mestinon gave only slight improvementI have maybe improved 1% from it and a little bit from Mestinon too.In context ↗ | Very severe | Low-dose Abilify / aripiprazole |
Adverse events
- “Some of my related nerves are numb (partially initiated by an SSRI).” In context ↗ Other
- Sertraline (Zoloft)“I did get mild serotonin syndrome from one pill of a different SSRI, Zoloft.” In context ↗ Other
Symptoms mentioned
Headaches & migraineLight & noise sensitivityMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaise
Their words about their symptoms
- Post-exertional malaise
I don’t even have the energy to think of it or else I crash.
In context ↗ - Neuropathy & tingling
Some of my related nerves are numb (partially initiated by an SSRI).
In context ↗ - Light & noise sensitivity
Nothing has shifted mine much though
In context ↗ - Mast cell (MCAS) & allergies
One dose gave me a fragrance allergy
In context ↗ - Headaches & migraine
chronic migraine
In context ↗ - Pain & fibromyalgia
Before the med, I had chronic pain from tick borne illnesses but without fatigue or PEM.
In context ↗