Long COVID with debilitating pain, fatigue and brain fog, somewhat easier two years on
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- Oct 2022
In their words
- Now: Somewhat better
even though I’m still dealing with this two years later, it does get easier
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A service industry worker has had long COVID since September 2020, with debilitating body pain, fatigue and brain fog that made 10+ hour shifts hard. Two months in was their worst point. Prednisone brought them back to normal but symptoms returned each time they stopped it. Two years on they were still dealing with it but said it had become easier.
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What they tried
Also tried
Their words about each treatment
- ibuprofen · Helped
I have to take 3,200 mg of over the counter ibuprofen (1,600 in a single dose) to only be in a moderate amount of pain
In context ↗ - Wellbutrin · Worse
I really struggled with that with Wellbutrin as well
In context ↗ - prednisone · Helped a lot
My doctor got me on prednisone and it brings me back to normal but the unfortunate thing is that the symptoms come right back when I’m off of it
In context ↗ - self care and acceptance · Helped
The thing that helped me the most was accepting my body where it was, learning to listen to its needs through self care
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020-11-15 | worst point, two months in, 10+ hour shiftsI’m barely hanging in there only two months inIn context ↗ | Mild | |
| 2021-04-08 | prednisone brought symptoms back to normalMy doctor got me on prednisone and it brings me back to normal but the unfortunate thing is that the symptoms come right back when I’m off of it.In context ↗ | Mild | Corticosteroid pulses |
| 2022-10-22 | still ill two years in but coping bettereven though I’m still dealing with this two years later, it does get easierIn context ↗ | Not stated |
Adverse events
- Bupropion (Wellbutrin)“I really struggled with that with Wellbutrin as well, which is another reason why I’m terrified of the idea of taking it.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Still struggling with pretty bad body pain, brain fog, and fatigue.
In context ↗