ME/CFS
Moderate → relapsedIll 5 years before improving or writing
ME/CFS with constant fatigue and cognitive problems, improved over three years then relapsed
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 5 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
So I’m really starting to think mecfs is what’s wrong with me.
In context ↗ - At worst: Moderate
I can only work the weekends now at a fast food job that I literally have to force myself through, disoriented and tired to my core.
In context ↗ - Now: Relapsed
I had a gradual almost bear recovery to normal only for my baseline to suddenly drop twice over the last 2 years.
In context ↗ - Began after: COVID
whatever is wrong with me has been happening since the end of 2020 after a Covid infection
Read from 8 of their posts and comments; links to the 7 this page draws on
Summary
A man fell ill at the end of 2020 after a Covid infection and substance use around the same time, with constant fatigue, cognitive problems, muscle aches, migraines and orthostatic intolerance. He slowly improved over three years to 75-80% of his former self, then lost that ground in multiple baseline drops, one after a night of drinking. By 2026, aged 22, he worked only weekends and lay around the rest of the time. Adderall and buspirone made him worse.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- migraine medication · No change
Migraines with blurry vision that don’t resolve with migraine medication
In context ↗ - Adderall · Worse
Adderall didn’t help me at all, actually made it worse afterwards for me unfortunately.
In context ↗ - buspirone · Much worse
recently did two months of buspirone and by far made me feel the worst out of any medication I’ve trialed so far
In context ↗ - Prozac · No change
Currently am on Prozac and haven’t noticed the same effect about a month in.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| end of 2020 | illness began after a Covid infectionI remember when it started I just felt cognitively very off and just an overwhelming fatigue and sense of unwellness.In context ↗ | Mild |
| about three years in | slow improvement while pushing throughI very slowly improved to about 75-80% of my previous self.In context ↗ | Mild |
| 2024 | baseline dropped after a night of drinkingAfter a night of drinking the feeling was back but worse.In context ↗ | Not stated |
| 2025 | baseline dropped furtherit has lowered to even further hell another time since and I’m worried I’m on the verge of it happening again.In context ↗ | Moderate |
| March 2026 | only managing weekend shifts, lying around the rest of the timeI can only work the weekends now at a fast food job that I literally have to force myself through, disoriented and tired to my core.In context ↗ | Moderate |
Adverse events
- Amphetamine salts (Adderall)“Adderall didn’t help me at all, actually made it worse afterwards for me unfortunately.” In context ↗ Made symptoms worse
- Buspirone (Buspar)“recently did two months of buspirone and by far made me feel the worst out of any medication I’ve trialed so far, besides maybe adderall” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogFlu-like symptomsHeadaches & migraineLight & noise sensitivityPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTinnitusVision problems
Their words about their symptoms
- Brain fog
Memory issues impacting life
In context ↗ - Brain fog
Trouble talking to people, word finding issues
In context ↗ - POTS & dysautonomia
Orthostatic Intolerance, did tilt test at home, heart rate raised by 60 bpm from lying to standing
In context ↗ - Tinnitus
have constant high pitch tinnitus
In context ↗ - Vision problems
Vision issues, light sensitivity, eye floaties, blurry
In context ↗ - Light & noise sensitivity
-light sensitivity, eye floaties,
In context ↗ - Headaches & migraine
Migraines with blurry vision that don’t resolve with migraine medication
In context ↗ - Pain & fibromyalgia
Leg muscles ache constantly no matter how much.
In context ↗ - Sleep problems
Never get refreshing sleep
In context ↗ - Post-exertional malaise
Thinking too hard or pushing myself to do something makes symptoms worse sometimes
In context ↗ - Flu-like symptoms
an overwhelming fatigue and sense of unwellness
In context ↗