Long COVID with nerve pain and insomnia, much better; gabapentin and celecoxib eased pain
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 2 years
- Last post
- Aug 2023
In their words
- Now: Much better
All other debilitating symptoms have gone away except the nerve problems and fatigue.
In context ↗ - Began after: COVID
since getting covid twice, the palpations and pounding occur frequently
In context ↗
Read from 16 of their posts and comments; links to the 13 this page draws on
Summary
Sequoia 73004, a man who was 49 in 2022, caught COVID in December 2020 and again in March 2021, and developed long COVID with pounding palpitations, constant burning nerve pain in his hands and feet, nausea, gagging and insomnia. Gabapentin and celecoxib took the edge off the pain, and by August 2023 his other debilitating symptoms had gone, leaving nerve pain and fatigue.
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What they tried
What they credit
Also tried
Their words about each treatment
- heart ablation · Helped
Ablation mostly fixed it but Covid brought some symptoms back.
In context ↗ - valsalva maneuver · No change
You might try the valsalva maneuver. Hasn't worked for me
In context ↗ - meditate · Not said
I generally just lie down, try to meditate and ride it out.
In context ↗ - arthritis and anti-inflammatory scripts · Helped
Tried arthritis and anti-inflammatory scripts. Only moderately helps.
In context ↗ - sleeping pills · Not said
Took some sleeping pills and rode it out.
In context ↗ - anti nausea prescriptions · No change
I've taken anti nausea and antacid prescriptions which didn't help.
In context ↗ - only eat after 6 pm · Helped
I only drink water throughout the day and I only eat after 6 pm. This seems to help to keep the nausea at bay
In context ↗ - Amazon Halo · Not said
I've been using an Amazon Halo. They were supercheap over the holidays. Seems to do a good job tracking sleep, heart rate, and other things.
In context ↗ - Kardia Mobile · Not said
For heart issues, I use a Kardia Mobile. It does catch the irregular beats
In context ↗ - adjusted lifestyle (naps, no heavy exercise, fewer long drives) · Not said
I've had to seriously adjust my lifestyle. Only eat between 6pm and 10pm. Take naps often.
In context ↗ - gabapentin · Helped
Gabapentin helps to take the edge off.
In context ↗ - exercise in the pool · Helped
it's the only form of exercise I can tolerate right now. And the cool water makes my joints less painful
In context ↗ - celecoxib · Helped
I'm taking gabapentin and celecoxib. No cure, but it helps take the edge off.
In context ↗ - meds for heart rate · Not said
He determined right away that my resting and standing heart rate was abnormal and prescribed meds.
In context ↗ - alcohol · Helped
liver issues (probably due to my alcohol intake that helps with the pain)
In context ↗
Approaches: Surgery & structural
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 23 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2020 | COVID-19 infection, PCR positiveTested positive 12/20 and 3/21.In context ↗ | Not stated |
| November 2022 | flared up after catching a common coldCaught a common cold recently, and wow, it really flaired up.In context ↗ | Moderate |
| February 2023 | nerve pain eased a bit on a new prescriptionPain has subsided a bit with new prescription.In context ↗ | Moderate |
| August 2023 | most debilitating symptoms gone; nerve problems and fatigue remainAll other debilitating symptoms have gone away except the nerve problems and fatigue.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
since getting covid twice, the palpations and pounding occur frequently
In context ↗ - Pain & fibromyalgia
Almost constant pain in hands and feet.
In context ↗ - Neuropathy & tingling
Feeling of hot needles, sometimes severe shooting pain.
In context ↗ - Sleep problems
Can't sleep much, can't function well.
In context ↗ - Loss of smell or taste
Certain smells became intolerable and would make me sick instantly.
In context ↗ - POTS & dysautonomia
He determined right away that my resting and standing heart rate was abnormal and prescribed meds.
In context ↗
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