ME/CFS with daily fatigue and crashes, somewhat better after ibuprofen and celecoxib
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
CFS gets intensity when doing more activity, of any kind
In context ↗ - At worst: Mild
keep going to job but using days offs, not going anywhere / not taking any other activity
In context ↗ - Now: Somewhat better
I actually can do more stuff without the same punishment ... I still feel tired and lacking energy
In context ↗
Summary
Dune 42813 has CFS with fatigue every day, severe dry eyes, muscle pain and brain fog, cycling between two to three manageable weeks and one to two week crashes while still going to work. Reducing gluten and meat and taking probiotics did nothing; they currently take carnitine, minerals and B vitamins without finding anything magic. In March 2025 ibuprofen and celecoxib let them push further and raised their ceiling, but overdoing triggered PEM and they stopped temporarily.
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What they tried
What they credit
Also tried
Their words about each treatment
- muscles gain exercises · Worse
Personaly I have noted that doing some muscles gain exercises are easy to me but I seems to have more fatigue afterwards.
In context ↗ - 10 mins of high intensity stuff · Not said
While doing 10 mins of high intensity stuff is really hard to sustain, but fatigue does not last as more.
In context ↗ - carnitine · Not said
right now I'm back to taking carnitine
In context ↗ - minerals (magnesium potassium calcium zinc ect) · Not said
minerals (magnesium potassium calcium zinc ect)
In context ↗ - vitamin C · Worse
About vitamin C : it makes me feel better then the effect goes out and I'm reeeally bad, I NEVER take it again.
In context ↗ - coffee · Worse
Similar with coffee.
In context ↗ - Tea, Matcha and Mate · Helped
Tea, Matcha and Mate does not make me crash and actually allow myself to get through more stuff without too much negative effects.
In context ↗ - reduce gluten, meat, good food habits · No change
I tried to reduce gluten, meat, having good food habits
In context ↗ - probiotics/kombucha · No change
took probiotics/kombucha ect, those kind of stuff did nothing to me.
In context ↗ - Ibuprofene · Helped
Ibuprofene, Celecoxib... Anti inflammatories are always helping me, making me able to go through the day / push further.
In context ↗
Approaches: Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024-06-16 | baseline: fatigue daily, brain fog, muscle pain, cycling good weeks and 1-2 week crashes, still workinggenerally I'll have 2 to 3 weeks being fine and 1 to 2 being badIn context ↗ | Mild |
| 2025-03-15 | felt better on anti-inflammatories, could push furtherI was really feeling better last weeks taking them almost daily / 2 days.In context ↗ | Mild |
| 2025-03-15 | triggered PEM, stopped anti-inflammatories temporarilyBut I triggered PEM and it's not helping in such situation so I'm stopping temporarly.In context ↗ | Mild |
Adverse events
- Vitamin C“About vitamin C : it makes me feel better then the effect goes out and I'm reeeally bad, I NEVER take it again.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
CFS gets intensity when doing more activity, of any kind
In context ↗ - Brain fog
brain fog is probably my most detestable symptom
In context ↗ - Pain & fibromyalgia
i also have severe dry eyes and moderate muscles pain
In context ↗ - Sleep problems
intense sleep need hits at 19PM
In context ↗
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