Long COVID with severe fatigue and speech issues, somewhat better with mushrooms and ginkgo
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 years
- Last post
- Mar 2024
In their words
- Condition: Long COVID
I've had long covid for 2 years and was reinfected just before Christmas.
In context ↗ - At worst: Mild
I found it very difficult as well, being in my final year of university and having to write essays.
In context ↗ - Now: Somewhat better
I feel like I am at 85% where I was before covid.
In context ↗ - Began after: COVID
I started with having severe fatigue just after my 1st covid infection in early 2020
In context ↗
Read from 19 of their posts and comments; links to the 15 this page draws on
Summary
Developed long COVID in March 2020, with severe fatigue, gut and joint pain, then a stutter, slurred speech, hallucinations, palpitations and nocturnal panic attacks. Reinfection in March 2022 and again in December 2023 brought symptoms back each time. Lion's Mane and other mushroom supplements, ginkgo and L-theanine helped anxiety and thinking; by March 2024 they felt about 85% of their pre-COVID self.
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What they tried
What they credit
Also tried
Their words about each treatment
- COVID vaccine (first dose) · Worse
the jab made me worse ... made my palpitations so bad that I ended up in hospital
In context ↗ - meditation and relaxation methods · Helped
I've tried methods of relaxation which work temporarily ... in the evening, I meditate and try and keep my mind quiet
- magnesium (with zinc and iron) · Helped
It has eased a little; I've been taking magnesium, and I've also started having vitamin B complex, vitamin D, C and zinc.
In context ↗ - gut bacteria tablets · Helped
I don't know what out of this concoction helps, but I've found it's made a bit of a difference.
In context ↗ - cranberry extract · Not said
In the morning, I take some gut bacteria tablets along with cranberry extract
In context ↗ - leafy green supplements with ginko, spirulina and alfalfa; ginko biloba and ginseng; fennel and chamomile tea · Helped
Reishi mushroom is also good, and so is ginko biloba and ginseng
In context ↗ - resveratrol · Not said
I drink a cup of fennel tea with more supplements (reservatrol, iron and fish oil)
In context ↗ - vitamin D (with vitamin C and zinc) · Helped
I take magnesium, vitamin c, d, and zinc ... It has eased a little
- garlic supplement · Not said
a garlic supplement with chamomile tea
In context ↗ - fish oil, later extra strength fish oil · Helped
I've found that I've had a bit of luck with extra strength fish oil ... my anxiety, nervousness and jitters have been more settled
In context ↗ - vitamin B complex · Helped
I've also started having vitamin B complex, vitamin D, C and zinc. ... It has eased a little
In context ↗ - Lions Mane and Reishi mushroom extracts · Helped
I found that I needed to take them over a long period of time, but I noticed a difference after a few weeks
In context ↗ - L-Theanine · Helped
there is some improvement the following day after I've taken it. My mind is more clear and, weirdly, I feel less down
In context ↗
Approaches: Amino acids and carnitine · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| March 2020 | first COVID infection, severe fatigue and joint pain beginI started with having severe fatigue just after my 1st covid infection in early 2020In context ↗ | |
| 2021 | joint and muscle pain began to ease over the first yearI've had muscular and joint pain since, although it began to ease after a yearIn context ↗ | |
| March 2022 | caught COVID again, joint pain worse and new symptomsI then caught covid again in March last year, and the joint pain is worse this timeIn context ↗ | |
| November 2022 | starting to have more good daysit's 8 months for me, and I'm staring to have more good daysIn context ↗ | |
| October 2023 | able to study and speak publicly again, speech much betterI went from blanking out, slurring speech, and now I am doing a masters degree where I've had to stand up and speak publiclyIn context ↗ | AHCC and medicinal mushrooms (reishi, shiitake, maitake) |
| December 2023 | reinfected just before Christmas, fatigue and anxiety returnedI was reinfected just before Christmas and the fatigue has returned, some joint pain and anxietyIn context ↗ | |
| March 2024 | feels about 85% of pre-COVID selfI am still healing, but I feel like I am at 85% where I was before covidIn context ↗ | AHCC and medicinal mushrooms (reishi, shiitake, maitake) |
Adverse events
- COVID vaccination as treatment“Had 1x vaccine which made my palpitations worse so they refused to vaccinate me further.” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“it made my palpitations so bad that I ended up in hospital.” In context ↗ ER visit
- Meditation, yoga, breathwork“I also find that deep breathing makes the anxiety worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
I had developed a stutter, slurring, and that was if I could think of the words to say. My brain would often blank out mid sentence
In context ↗ - Anxiety & low mood
covid came along and bam, now I get panic attacks out of the blue for no reason
In context ↗ - Sleep problems
nocturnal panic attacks, myoclonic jerking, and insomnia that keeps me up all night at times
In context ↗ - Pain & fibromyalgia
I've had muscular and joint pain since
In context ↗ - Gut problems
I also had digestive problems and joint pain which lasted about a year and a half
In context ↗ - Heart symptoms & palpitations
First caught covid I'm 2020, had long covid with palpitations
In context ↗ - POTS & dysautonomia
dealing with chronic fatigue, joint pain, blood sugar and blood pressure issues
In context ↗
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