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Condition not stated Mild → no benefitIll for 4 years

Four years of brain fog, fatigue and visual symptoms, no improvement from Adderall

Condition
Condition not stated
At worst
Mild (working or studying, with limits)
Ill for
4 years
Last post
Jan 2020
In their words
  • Condition: Condition not statedI am doubting that I have CFS In context ↗
  • At worst: MildI have been able to teach high school Biology as well as return for another bachelor's degree in CS. In context ↗
  • Now: No benefitFor the past four years these symptoms have pretty much stayed the same with little relief despite my efforts in trying to remedy them in different ways. In context ↗
  • Says they never had: Post-exertional malaiseYes that's exactly my thoughts that it could not be CFS without PEM.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A 29-year-old man had brain fog, lightheadedness, fatigue and visual symptoms for four years after a gastrointestinal episode in summer 2016. He continued teaching high school and studying for a computer science degree. Adderall slightly helped cognition but not fatigue; antidepressants lifted mood but not other symptoms. He doubted he had CFS because exercise caused no lasting worsening.

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What they tried

Also tried

adderall· Helpedantidepressants· Helpedlifting weights and stationary bike cardio· No change
Their words about each treatment
  • adderall · HelpedThe adderall seems to help a bit with the cognitive difficulties, but not near to the point on where I was before the onset of the symptoms and does nothing to help with fatigue In context ↗
  • antidepressants · HelpedThe GP tried to put me on a couple of different antidepressants which did little to alleviate any of the symptoms did enhance my mood a bit In context ↗
  • lifting weights and stationary bike cardio · No changeI do not notice any significant change in anything else. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
Summer 2016gastrointestinal episode after eating a hamburger; appetite lost, then symptoms beganthese symptoms developed in the Summer of 16' in which it started off by me eating a hamburger from a local restaurant In context ↗Mild
late 2016lightheadedness became constant and fatigue increased; eye floaters and flashes appearedeventually the lightheaded feeling was constant despite being up or laying down. I then began to feel much more fatigued then normal In context ↗Mild
2020-01-23symptoms unchanged; still teaching and studying, adderall helping cognition onlyThis is currently where I sit now with these symptoms In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogbrain fog/lightheadedness(constant) In context ↗
  • POTS & dysautonomiathe lightheaded feeling would subside completely when I would lay down In context ↗
  • Breathlessnessshortness of breath which isn't severe at all In context ↗
  • Vision problemsmultitude of eye floaters developed out of nowhere/flashes of light in vision In context ↗
  • Gut problemsI lost my appetite completely for a minimum of two weeks In context ↗
  • Anxiety & low mooddid enhance my mood a bit since I have been down since I have developed these symptoms In context ↗
  • Sleep problemsfatigue(moderate regardless of the amount I sleep) In context ↗

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