ME/CFS
Moderate → no benefitIll for 4 years
Moderate ME for four years, unable to do anything around others, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 4 years
- Last post
- Sep 2020
In their words
- Condition: ME/CFS
average to moderate M.E for 4 years
In context ↗ - At worst: Moderate
average to moderate M.E for 4 years
In context ↗ - Now: No benefit
I end up spiraling and relapsing due to the effort and force on my brain.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Puffin 92273 is a 29-year-old woman who had had moderate ME for four years by September 2020. She described pain, anxiety and brain fog that worsened around other people, leaving her unable to do anything and relapsing from the effort. She had stopped antidepressants and anti-anxiety medication because they left her feeling zombied, and was looking into high-dose mushrooms to help her brain reset.
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What they tried
Also tried
Their words about each treatment
- anti-depressants · Worse
I have been on every medication and anti-depressants and anti-anxiety which I have stopped taking as I generally felt zombied and unable to cope on it
In context ↗ - activity around other people · Worse
I'm slowly attempting to get back into some form of activity around other people ... I end up spiraling and relapsing due to the effort and force on my brain
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | ME/CFS beganI am a 29 Yo female that has had average to moderate M.E for 4 yearsIn context ↗ | Moderate |
| 2020-09-07 | still moderate ME, relapsing around other peoplemy pain increases and my anxiety and brain fog take over when I am around other people, essentially leaving me unable to do anythingIn context ↗ | Moderate |
Adverse events
- Antidepressants (unspecified)“I have been on every medication and anti-depressants and anti-anxiety which I have stopped taking as I generally felt zombied and unable to cope on it” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
my pain increases
In context ↗ - Brain fog
my anxiety and brain fog take over when I am around other people
In context ↗ - Post-exertional malaise
I end up spiraling and relapsing due to the effort and force on my brain
In context ↗