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Long COVID Mild → recoveredIll 16 months before improving or writing

Long COVID constant nerve pain and brain fog while working, now recovered after gabapentin

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
16 months
Last post
Nov 2025
In their words
  • Condition: Long COVIDI got this a few months after covid in Feb 2023 In context ↗
  • At worst: MildI couldn't even look or talk to my boss without going into an episode In context ↗
  • Now: Recoveredthis was the LAST thing i had to do to rid myself of LC In context ↗
  • Began after: COVIDI got this a few months after covid in Feb 2023, and the pain has not been going away and sometimes getting worse.
Read from 35 of their posts and comments; links to the 20 this page draws on

Request to remove this story

Summary

Long COVID began after a February 2023 infection, with burning, itching nerve pain in their hands and feet, palpitations and brain fog; they kept working through constant pain. Gabapentin, a functional medicine work-up with nebulised medicine and vitamins, and finally cutting out morning coffee each helped. Summer heat set them back in June 2024, but by July they were pain free and exercising again; in 2025 they could drink coffee without trouble.

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What they tried

Also tried

Concerta (methylphenidate)· Helped a lotnebulizer medication· Helped a lotcutting out coffee in the morning· Helped a lotGabapentin· Helpedlisinopril· Helpedhydroxyzine· Helpedwalks and exercise· Helpedvitamins and supplements from the functional medicine doctor· Helpednon-THC CBD· HelpedTRT (testosterone)· No changediet change· No changeacupuncture· Not saidNattokinase· Not saidNitric acid suppliments· Not said
Their words about each treatment
  • acupuncture · Not saidDuring this time I was doing acupuncture which the acupuncturist took as an opportunity to confirm her work was working (maybe, maybe not). In context ↗
  • Gabapentin · HelpedFirst they gave me 100mg to take 1-2 times a day ... so now i'm taking 600mg 3 times a day and it's pretty much gone. In context ↗
  • lisinopril · HelpedThe gabba and lisinopril to slow my heart rate (sepperate issue with my ADD medicine) seem to chill me out and it really helped. In context ↗
  • hydroxyzine · Helpedif u see a doc, ask for hydroxyzine. after you build a small tolerance you can take it in the day time In context ↗
  • TRT (testosterone) · No changebeen taking it since LC just over a year now. I can't tell a difference to be honest. In context ↗
  • walks and exercise · HelpedThat went away after I got back into exercise In context ↗
  • vitamins and supplements from the functional medicine doctor · Helpedi also went to see a Functional Medicine doctor and started helping my body heal faster with supplements In context ↗
  • non-THC CBD · HelpedI started taking non-thc CBD twice daily and that keeps me pretty relaxed so I dont writhe in pain in an office. In context ↗
  • Concerta (methylphenidate) · Helped a lotgetting back on ADHD meds, specifically Concerta helped cut through the brain fog ... it worked great, cuts right through that brain fog In context ↗
  • Nattokinase · Not saidNattokinase is good for that, which im already taking. In context ↗
  • nebulizer medication · Helped a lotUsing the nebulizer my doc prescribed and the gross sulfer smelling medicine, I started seeing major improvements. In context ↗
  • Nitric acid suppliments · Not saidI just started taking Nitric acid suppliments to help my blood vessels expand and contract more properly. In context ↗
  • cutting out coffee in the morning · Helped a lotI eventually just started skipping coffee, and then something amazing happened. ... but nothing has given me such immediate relief as just simply cutting out coffee. In context ↗
  • diet change · No changediet didn't help me with my pain issues In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered6 mo12 mo18 mo2 y2.5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 6 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
February 2023COVID infection, long COVID symptoms about a month laterI got sick in Feb and didn't notice symptoms til a month or so after In context ↗Not stated
mid-2023burning and itching nerve pain at its worst, set off by heat, stress and anxiety while still workingthe pain was driving me literally insane ... I couldn't even look or talk to my boss without going into an episodeMild
October 2023low-dose gabapentin stopped the pain overnightHe sent me the low dose mentioned in the article, and this morning I am pain-free. In context ↗Mild
November 2023higher gabapentin dose after small fibre neuropathy found, symptoms 98% stoppednow i'm taking 600mg 3 times a day and it's pretty much gone In context ↗Mild
February 2024functional medicine doctor, testing and supplements, 90% of sensations gone2 weeks in and I can already take hot baths again, showers dont bother me, and im 90% not feeling any sensations In context ↗Mild
May 2024nebulised medicine for lung inflammation gave major improvements, about 80% backUsing the nebulizer my doc prescribed and the gross sulfer smelling medicine, I started seeing major improvements. In context ↗Mild
June 2024summer heat brought the nerve pain back, back to the startI was 90% back to life and lately i'm back to the start, summer heat causes my issues to be very painful nerve wise In context ↗Mild
July 2024cut out morning coffee, all symptoms gone, sweating and exercise backall my symptoms are gone ... I'm back! In context ↗Near normal
November 2025still well, drinking coffee again with no cortisol troubleafter that I was good and im back to drinking coffee without any cortisol issues In context ↗Recovered

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Neuropathy & tinglingitching and burning in my hands and feet In context ↗
  • Heart symptoms & palpitationshigh stress and heart palpitations still lingered and continued to trigger the neuro/vascular pain throughout my body In context ↗
  • Brain fogcuts right through that brain fog In context ↗
  • Anxiety & low moodanxiety was the last devil to deal with before ridding myself of LC In context ↗
  • Muscle weaknessget morning weakness in my muscles lately In context ↗
  • Temperature regulationmy sweat stopped working and I have erythromelalgia type flares In context ↗

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