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Long COVID Mild → near normalIll 10 months before improving or writing

Long COVID with chest pain, breathlessness and suspected POTS, now back to daily running

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
10 months
Last post
Jul 2025
In their words
  • Condition: Long COVIDI’ve been struggling with long Covid since the end of 2023 In context ↗
  • At worst: MildGoing from running 37 minute 10ks to not running at all within one year is unbelievably depressing In context ↗
  • Now: Near normalI was back to daily running with no PEM or really any other symptoms In context ↗
  • Began after: COVIDI’ve been struggling with long Covid since the end of 2023 In context ↗
Read from 12 of their posts and comments; links to the 9 this page draws on

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Summary

Summit 71323 developed long COVID at the end of 2023 with suspected POTS, dysautonomia, bounding pulse, breathlessness, chest pain and visual symptoms. Setbacks followed a six-mile run and heavy lifting/cycling, and a fourth COVID reinfection in summer 2024 caused a short relapse. By late 2024 they had recovered from most symptoms and were back to daily running without PEM, though tinnitus, visual snow and suspected POTS remained; they later reported foamy urine, abdominal discomfort and painful groin lymph nodes.

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What they tried

Also tried

Their words about each treatment
  • exercise (cycling, running) · WorseI overestimated my recovery progress and jumped up in exercise intensity far too quickly (6 mile run), which felt fine at the time, but now has caused a reasonable set back In context ↗
  • staying hydrated · Helpedthe main things like staying hydrated, not wearing tight headphones, reducing screen time, and massaging around my sinus areas seemed to help In context ↗
  • ibuprofen · No changetried ibuprofen, anti-acids, inhalers, warm compress, and nothing, seriously nothing makes it better or worse In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered9 mo12 mo15 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
end of 2023long COVID onsetI’ve been struggling with long Covid since the end of 2023 In context ↗Not stated
2024-07-18setback after a 6-mile runjumped up in exercise intensity far too quickly (6 mile run) ... caused a reasonable set back In context ↗Mild
2024-08-17flare after lifting at work and cyclingI think I’m having a pretty bad flare. I’ve been doing a lot of lifting at work recently In context ↗Mild
2024-08-22fourth COVID reinfection; short relapseI was reinfected again in the summer, which caused a short relapse but nothing long lasting In context ↗Mild
2024-09-27burning chest pain; stopped cyclingI have had to stop cycling because of a burning chest pain In context ↗Mild
2024-10-13recovered from most symptoms; daily exercise without crashingI’m now getting to the point where I’m recovered from most of my symptoms In context ↗Near normal
2024-11-07back to daily running without PEM; new urinary and gut symptomsI was back to daily running with no PEM or really any other symptoms In context ↗Near normal
2025-07-08throat pressure improved somewhatIt got kind of better In context ↗Near normal

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisewhich felt fine at the time, but now has caused a reasonable set back In context ↗
  • POTS & dysautonomiaThe main things left now are neurological (tinnitus, VSS, etc..) as well as pots In context ↗
  • Sleep problemsI can’t get to sleep because it’s shaking me at night In context ↗
  • Pain & fibromyalgiaMy costocondritis is also having a flare at the moment. In context ↗
  • Headaches & migraineHad a lot of pressure around my eyes and temples In context ↗
  • Gut problemsyellow fluffy undigested stools In context ↗
  • Breathlessnessfeeing breathless even on walks In context ↗
  • Heart symptoms & palpitationsI’m getting lots of PVC’s during exercise again In context ↗
  • Anxiety & low moodIt has driven me absolutely mental In context ↗
  • TinnitusThe main things left now are neurological (tinnitus, VSS, etc..) In context ↗
  • Hair lossIs my hair gonna start falling out again? In context ↗

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