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Long COVID Mild → no benefitIll for 3 years

Long COVID with fatigue, PEM and asthma, still not recovered

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
3 years
Last post
May 2025
In their words
  • Condition: Long COVIDI got Covid in June 2022 and was diagnosed with Long Covid in October 2022. In context ↗
  • At worst: MildI have PEM and exercising wipes me out for days! In context ↗
  • Now: No benefitI have gained about 25 pounds since I got LC…and trying to lose it is basically impossible since I have PEM and exercising wipes me out for days! In context ↗
  • Began after: COVIDI got Covid in June 2022 and was diagnosed with Long Covid in October 2022. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Hill 72131, a woman in her late twenties, got COVID-19 in June 2022 and was diagnosed with long COVID that October. She had severe persistent asthma, a resting heart rate of 110-140, headaches, gut problems and fatigue, and by 2025 described PEM that left her wiped out for days after exercise. She also gained about 25 pounds and had not recovered.

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What they tried

Their words about each treatment
  • steroid course · Worsesome side effects from the steroid course I had to go on in June when I got Covid In context ↗
  • Trelegy · Not saidI’m on a daily maintenance inhaler (Trelegy), Singulair, and Zyrtec. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
June 2022COVID-19 infection; childhood asthma returned with an attack the day she tested positiveI got Covid in June 2022 and was diagnosed with Long Covid in October 2022. In context ↗Mild
2025-05-09still has PEM; gained about 25 pounds since long COVID beganI have gained about 25 pounds since I got LC…and trying to lose it is basically impossible since I have PEM and exercising wipes me out for days! In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisetrying to lose it is basically impossible since I have PEM and exercising wipes me out for days! In context ↗
  • Breathlessnessinability to exercise without getting winded In context ↗
  • Heart symptoms & palpitationsI’ve had a high heart rate (110-140 at rest) and high blood pressure since getting Covid. In context ↗
  • Headaches & migraineI have fatigue (no apnea), inability to exercise without getting winded, headaches, stomach issues (consultation, diarrhea) In context ↗
  • Gut problemsstomach issues (consultation, diarrhea) In context ↗
  • Anxiety & low moodI’m extremely sensitive leading up to them now, prone to crying, easily irritated and frustrated. In context ↗

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