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Long COVID Moderate → no benefitIll for 4 years

Four years of long COVID pain, fatigue and migraines, still awful

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
4 years
Last post
Aug 2025
In their words
  • Condition: Long COVIDI got covid 4 years ago and then had it twice more In context ↗
  • At worst: ModerateI have extreme bodily pain and fatigue ... I was very healthy pre covid and thought this would be the best to help my essentially wasted muscles In context ↗
  • Now: No benefitI got covid in 2021 - I feel absolutely awful. I don't want to say I feel worse. It's been worse, better. The worse. Etc. In context ↗
  • Began after: COVIDI got covid in 2021 In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user who caught COVID-19 in 2021 and was reinfected twice described extreme bodily pain, fatigue, migraines, poor sleep and wasted muscles after four years, with their late twenties lost to illness. Lacking insurance, they could not see the specialists they felt they needed, and had not applied for disability because they needed more specialists and an attorney. They were on Topamax and ADHD medication and trying yoga; at their last post they still felt awful, having been worse, then better, then worse again.

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What they tried

Their words about each treatment
  • Cooling blankets and cooling neck pillows · HelpedCooling blankets have helped as well as ※cooling neck pillows※ you can put in the freezer! It's not a solution but offers some relief. In context ↗
  • Liquid IV drink mix · Not saidkeeping up with ※liquid iv※ (the drink mix) on a table nearby at all times when I inevitably sweat In context ↗
  • clonazepam · Helped(I'm now on clonazepam and that helps reduce them - I'm on them for psychiatric reasons as well - low dose for those concerned) In context ↗
  • Topamax · Not saidI'm on Topamax myself. A fairly high dosage actually In context ↗
  • Meds for ADHD · Not saidI've got adhd as well. So I'm also on meds for that. In context ↗
  • yoga · Worsestarting to get back into yoga again, as difficult as it is ... but boy.. Does it hurt so much. In context ↗
  • therapist and psychiatrist · Not saidI'm only seeing g a therapist and psychiatrist for my other issues. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2021caught COVID-19I got covid in 2021 In context ↗Not stated
2025-08-30still feeling awful, illness fluctuatingI don't want to say I feel worse. It's been worse, better. The worse. Etc. In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaI have extreme bodily pain and fatigue. In context ↗
  • Muscle weaknessmy essentially wasted muscles In context ↗
  • Headaches & migraineMigraines have been something I've dealt with since I was young. In context ↗
  • Sleep problemsmy sleep is often not very good to put it lightly In context ↗
  • Brain fogwith all the other issues I have my brain is fuzzy In context ↗
  • Anxiety & low moodI too, have felt like having a deadline. In context ↗

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