Four years of long COVID pain, fatigue and migraines, still awful
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- 4 years
- Last post
- Aug 2025
In their words
- Condition: Long COVID
I got covid 4 years ago and then had it twice more
In context ↗ - At worst: Moderate
I have extreme bodily pain and fatigue ... I was very healthy pre covid and thought this would be the best to help my essentially wasted muscles
In context ↗ - Now: No benefit
I got covid in 2021 - I feel absolutely awful. I don't want to say I feel worse. It's been worse, better. The worse. Etc.
In context ↗ - Began after: COVID
I got covid in 2021
In context ↗
Summary
A Reddit user who caught COVID-19 in 2021 and was reinfected twice described extreme bodily pain, fatigue, migraines, poor sleep and wasted muscles after four years, with their late twenties lost to illness. Lacking insurance, they could not see the specialists they felt they needed, and had not applied for disability because they needed more specialists and an attorney. They were on Topamax and ADHD medication and trying yoga; at their last post they still felt awful, having been worse, then better, then worse again.
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What they tried
Also tried
Their words about each treatment
- Cooling blankets and cooling neck pillows · Helped
Cooling blankets have helped as well as ※cooling neck pillows※ you can put in the freezer! It's not a solution but offers some relief.
In context ↗ - Liquid IV drink mix · Not said
keeping up with ※liquid iv※ (the drink mix) on a table nearby at all times when I inevitably sweat
In context ↗ - clonazepam · Helped
(I'm now on clonazepam and that helps reduce them - I'm on them for psychiatric reasons as well - low dose for those concerned)
In context ↗ - Topamax · Not said
I'm on Topamax myself. A fairly high dosage actually
In context ↗ - Meds for ADHD · Not said
I've got adhd as well. So I'm also on meds for that.
In context ↗ - yoga · Worse
starting to get back into yoga again, as difficult as it is ... but boy.. Does it hurt so much.
In context ↗ - therapist and psychiatrist · Not said
I'm only seeing g a therapist and psychiatrist for my other issues.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| 2021 | caught COVID-19I got covid in 2021In context ↗ | Not stated |
| 2025-08-30 | still feeling awful, illness fluctuatingI don't want to say I feel worse. It's been worse, better. The worse. Etc.In context ↗ | Moderate |
Adverse events
- Qigong, tai chi and isometric yoga“starting to get back into yoga again, as difficult as it is ... but boy.. Does it hurt so much.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I have extreme bodily pain and fatigue.
In context ↗ - Muscle weakness
my essentially wasted muscles
In context ↗ - Headaches & migraine
Migraines have been something I've dealt with since I was young.
In context ↗ - Sleep problems
my sleep is often not very good to put it lightly
In context ↗ - Brain fog
with all the other issues I have my brain is fuzzy
In context ↗ - Anxiety & low mood
I too, have felt like having a deadline.
In context ↗