Long COVID
Moderate → somewhat betterIll 11 months before improving or writing
Long COVID with over 100 symptoms including PEM, somewhat better by 11 months
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 11 months
- Last post
- Nov 2021
In their words
- Condition: Long COVID
I have Long covid for 11 months now
In context ↗ - At worst: Moderate
6/7 days at school i feel like I cant even sit anymore
In context ↗ - Now: Somewhat better
the long covid is sometimes much better, than it was ... so sick now...its almost one year
- Began after: COVID
I had covid 19 (not mutation of virus) and sice December, when I catch it im long hauler
In context ↗
Read from 20 of their posts and comments; links to the 15 this page draws on
Summary
A 17-year-old boy fell ill with long COVID in December 2020 and reported over 100 symptoms including PEM, headaches, chest pain, diarrhoea, breathlessness and insomnia. A variant reinfection and two vaccine doses each set him back. Healthy eating, herbs, cold showers, breathing exercises and meditation did not clearly help. By 11 months he said the long COVID was sometimes much better and manageable at school, though he still caught colds weekly.
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What they tried
Also tried
eating healthy, lots of vegetables, no sugar· Helpedbreathing exercises (Wim Hof method)· Helpedprobiotics· Helpedbrain retraining· Helpedsupplements· No changereishi· No changeniacin flush (niacinB3)· No changequercetin· No changeherbs and turmeric· No changevitamins· No changeacupuncture to myself· No changemelatonin· No changePfizer vaccination· Worseantibiotics· Not saidcold baths / cold showers· Not saidelectrolytes in water· Not saidpacing· Not said
Their words about each treatment
- antibiotics · Not said
I'm already takibg the 5th antibiotics ...sonetimes Its better, but then again much worse :(
In context ↗ - eating healthy, lots of vegetables, no sugar · Helped
Im jist eating vegetable... Lots of vegetable...it helps...but not much
In context ↗ - supplements · No change
im eatinf so healthy...and so many supplemants...but nothing really helps
In context ↗ - Pfizer vaccination · Worse
Vaccination make me feel better for 1 week, than worse about 50% for 2 weeks and than just like before vaccination
In context ↗ - reishi · No change
Im also eating reishi, and niacinB3, quercetin, and lots of healthy herbs...but still feels like a shit
In context ↗ - niacin flush (niacinB3) · No change
Ive tried niacin flush, lots of herbs, eating healthy without sugar, cold showers, breathing exercises and nothing help
In context ↗ - quercetin · No change
Im also eating reishi, and niacinB3, quercetin, and lots of healthy herbs
In context ↗ - herbs and turmeric · No change
Im eating a lot of reishi and turmeric, all vitamins, no sugar, vegetable at keast 6 kinds every day + sea food and still getting sick
In context ↗ - cold baths / cold showers · Not said
Im doing breathing exercises (wim hof method) every day + cold baths
In context ↗ - vitamins · No change
all vitamins are enough ... but still feels like a shit
In context ↗ - breathing exercises (Wim Hof method) · Helped
Im doing breathing exercises (wim hof method) every day ... It works with some LH symptoms
In context ↗ - electrolytes in water · Not said
addinf elextrolytes to my water
In context ↗ - acupuncture to myself · No change
Im doing breathing exercises, acupunture to myself and other stuff, but nothing seems to help
In context ↗ - melatonin · No change
i have tried melatonin and didnt work
In context ↗ - probiotics · Helped
for abdominal pain and diarrhea mostly helps probiotics
In context ↗ - brain retraining · Helped
for abdominal pain and diarrhea mostly helps probiotics, for something else brain retraining
In context ↗ - pacing · Not said
Im trying my best, pacing everytime, when i cant (when im not at school)
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| December 2020 | COVID-19 infection; very ill for the first two monthsI had covid 19 (not mutation of virus) and sice December, when I catch it im long haulerIn context ↗ | Moderate |
| March 2021 | first improvement after two months of feeling totally badafter 2 months of feeling totally bad Ive felt better finnalyIn context ↗ | Mild |
| late March 2021 | reinfection with the British variant; back to how he was in Decembernow I got reinfected 2 weeks ago with british mutation and im back in december...its even hard to get from bed nowIn context ↗ | Moderate |
| June 2021 | before vaccination felt about 85% well, bad days about 60%before the vaccination I was about 85% good...most days i felt jist random pains, sore throat and not wo much iritating symptoms and the bad days were about 60%In context ↗ | Mild |
| July 2021 | breathlessness, chest pain, headaches and diarrhoea returned after first Pfizer dose1 day after vaccination my hand hurt much and after 6 months I again have breathlessness, painfull chest, big fatiguey headaches and diarrheaIn context ↗ | Moderate |
| August 2021 | second Pfizer dose; felt about 0% and like a zombie 24/7last 3 weeks i feel about 0% at recovery...totally like a zombie 24/7In context ↗ | Moderate |
| November 2021 | long COVID sometimes much better and manageable at school, but catching colds almost weeklythe long covid is sometimes much better, than it was.... So it sometimes managable at schoolIn context ↗ | Mild |
Adverse events
- Antibiotics (unspecified)“I'm already takibg the 5th antibiotics ...sonetimes Its better, but then again much worse :(” In context ↗ Made symptoms worse
- COVID vaccination as treatment“1 day after vaccination my hand hurt much and after 6 months I again have breathlessness, painfull chest” In context ↗ Side effects
- COVID vaccination as treatment“Im also after 2nd dose and I have sooo many symptoms...they are so BAD” In context ↗ Side effects
- COVID vaccination as treatment“Vaccination make me feel better for 1 week, than worse about 50% for 2 weeks and than just like before vaccination” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
and also i have PEM
In context ↗ - Sleep problems
insomnia is also one of my lh symptoms
In context ↗ - Pain & fibromyalgia
joint and muscle pain
In context ↗ - Headaches & migraine
Headaches, migraines
In context ↗ - Gut problems
Abdominal pain, diarrhea
In context ↗ - Temperature regulation
Cold and hot flushes
In context ↗ - Anxiety & low mood
thinking about suicide...but i would not do that
In context ↗