Long COVID
Mild → no benefitIll for 13 monthsNeeds ongoing treatment
Nerve pain with long COVID still near-constant, with no improvement
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 13 months
- Last post
- Jul 2023
In their words
- Condition: Long COVID
Symptoms came on with covid in May ‘22 and never left.
In context ↗ - At worst: Mild
I’m in pain pretty much constantly, but I WFH and do my best to mask it throughout the day.
In context ↗ - Now: No benefit
Pretty miserable at this point, and my neurologist has essentially said some people heal from nerve damage and some don’t, only time will tell.
In context ↗ - Began after: COVID
Came on with covid in late May ‘22
Summary
Zephyr 56551 developed burning, tingling and shooting nerve pain in the arms and legs with a COVID infection in late May 2022, and it never left. An EMG confirmed peroneal and sural nerve damage, and a neurologist diagnosed peripheral neuropathy; they also had poor temperature control. Amitriptyline did nothing and gabapentin helped only a bit, though missing a dose hurt far worse; over a year on they were still in near-constant pain but working from home.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- Gabapentin · Helped
symptoms are a bit better but I still have constant buzzing, aching, itching, or infected feeling arms and legs
In context ↗ - amitriptyline · No change
I tried amitriptyline first at the suggestion of my neurologist - didn’t do anything
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late May '22 | COVID infection; burning and tingling nerve pain in arms and legs began and never leftSymptoms came on with covid in May ‘22 and never left.In context ↗ | Mild |
| 2023-07-13 | more than a year of constant nerve pain; gabapentin helps a little; working from home and masking itNow I’m taking about half the max dose of Gabapentin daily and symptoms are a bit better but I still have constant buzzing, aching, itching, or infected feeling arms and legs.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
My feet, legs and arms have hurt for one year+, and symptoms shift between buzzing, burning, tingling, aching, and shooting pains.
In context ↗ - Pain & fibromyalgia
I’m in pain pretty much constantly
In context ↗ - Temperature regulation
I’ve also experienced almost a near inability to control my body temperature since getting covid.
In context ↗