Bedridden with long COVID, slow improvement on diet and sleep, then a crash
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 11 months
- Last post
- Jan 2025
In their words
- Condition: Long COVID
I’ve been through hell and back with my LC.
In context ↗ - At worst: Severe
A couple of months ago I was bedridden.
In context ↗ - Now: Relapsed
Crush fatigue. Exercise intolerance. Soul crushing no hope. ... I can have somewhat of a good day if I’m careful and pace.
In context ↗ - Began after: COVID
I think Covid hammered my nervous system.
Read from 12 of their posts and comments; links to the 9 this page draws on
Summary
A very active 37-year-old, they fell ill with long COVID in early 2024 and were bedridden by that October, at one point begging not to wake up in the morning. They credit a diet change, electrolytes, supplements, fasting and sleep with slow improvement; by December 2024 they had been to the gym twice. A 30-minute treadmill attempt in January 2025 caused a four-day crash, and they still hurt all over after overdoing it.
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What they tried
What they credit
Also tried
Their words about each treatment
- diet change (cut out sugars and processed foods) · Helped a lot
Changing my diet changed everything for me.
In context ↗ - electrolytes · Helped
The only thing that makes a difference to me is good sleep and electrolytes.
In context ↗ - NAC · Helped
Supplements I take are NAC, Bromelain, natto, vit c, vit B12, zinc and coQ10. This gets me out of bed.
In context ↗ - fasting around 12-16 hours · Helped
Absolutely feel better when I’m fasting. I’ll fast for around 12-16 hours to give my body a rest.
In context ↗ - pacing · Helped
I can have somewhat of a good day if I’m careful and pace.
In context ↗ - sleep and rest · Helped
The only thing that helps in sleep and rest.
In context ↗ - 30 minutes on the treadmill · Worse
I tried 30 minutes on the treadmill and the next 4 days felt like I’ve been hit by a truck.
In context ↗
Approaches: POTS medication · Anticoagulants · Diet · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2024 | suddenly became illI was stood in a park and suddenly had a thought ‘I’m not feeling well and this time it won’t go away.’In context ↗ | Not stated |
| October 2024 | bedriddenA couple of months ago I was bedridden.In context ↗ | Severe |
| December 2024 | less fatigue, going out more, gym twiceA couple of months ago I was bedridden. This week I’ve been to the gym twice. Feeling great.In context ↗ | Mild |
| 2025-01-08 | crashed after 30 minutes on the treadmillI tried 30 minutes on the treadmill and the next 4 days felt like I’ve been hit by a truck.In context ↗ | Moderate |
| 2025-01-28 | good days only when careful and pacingI can have somewhat of a good day if I’m careful and pace.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
My PEM doesn’t allow me to work out.
In context ↗ - Heart symptoms & palpitations
I had them all day everyday for about 2 weeks.
In context ↗ - Pain & fibromyalgia
I still hurt all over if I over do it.
In context ↗ - Anxiety & low mood
I was begging not to wake up in the morning it was that bad
In context ↗ - Sleep problems
I am a totally different person if I’ve slept well. If not I’m a hot mess until the evening.
In context ↗
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