Long COVID
Mild → somewhat betterIll 11 months before improving or writing
Long COVID with brain fog and headaches, somewhat better; turmeric helped headaches a bit
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 11 months
- Last post
- Mar 2024
In their words
- Condition: Long COVID
Long covid sufferer for 11 months and just heard that this sub exists.
In context ↗ - At worst: Mild
I’m able to work but have decided to just stay off booze and trying to do anything energetic for the next 2 or 3 months.
In context ↗ - Now: Somewhat better
I’m better than I was 6 months ago but main symptoms I’m still struggling with are headaches (particularly when looking at bright screens for too long), tinnitus, peripheral neuropathy (numbness and tingling) and still just a fairly constant feeling like I’m slightly hungover.
In context ↗ - Began after: COVID
Long covid sufferer for 11 months
In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
Eagle 90624 has had long COVID since early 2023; at 11 months they were better than six months earlier but still had headaches, brain fog, tinnitus, peripheral neuropathy and a constant hungover feeling. They could work but avoided alcohol and exertion. Fexofenadine and loratadine cleared their histamine food reactions but upset their stomach; a low-level prescription helped only temporarily, turmeric helped a bit with headaches, and a first Botox round helped headaches but a second did nothing.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- fexofenadine · Helped
the issues I was having with histamine foods 6 months ago went away after taking fexofenadine and loratadine for several weeks
In context ↗ - Toxaprevent · Helped
something called Toxaprevent also helped and doesn’t require a prescription
In context ↗ - staying off booze and anything energetic · Not said
I’m able to work but have decided to just stay off booze and trying to do anything energetic for the next 2 or 3 months
In context ↗ - Quviviq · Helped
This has helped me recently
In context ↗ - CBD oil · Helped
CBD oil also makes a bit of a difference
In context ↗ - steroids · Helped
I was prescribed low level ones, helped a bit but as with most other things I have been prescribed throughout the long covid ordeal, it only improved things temporarily and wasn’t a long term solution
In context ↗ - Tumeric · Helped
Tumeric definitely has helped a bit with my headaches.
In context ↗ - Botox · Helped
First time it definitely helped my headaches. Did it again 3 months later and it did nothing
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023-02 | long COVID beganLong covid sufferer for 11 monthsIn context ↗ | Not stated |
| 2023-07 | worse than at 11 monthsI’m better than I was 6 months agoIn context ↗ | Mild |
| 2024-01 | doing a bit better but still symptomaticAm doing a bit better but I still struggle with brain fog, headaches and floaters / aura in my eyesIn context ↗ | Mild |
| 2024-03 | still in the thick of it; headaches eased by first Botox onlyIm very much still in the thick of it with long covidIn context ↗ | Mild |
Adverse events
- Fexofenadine (Allegra), Loratadine (Claritin)“They ended up doing a bit of a number on my stomach so I had to stop taking” In context ↗ Gut side effects
Symptoms mentioned
Brain fogFlu-like symptomsGut problemsHeadaches & migraineLight & noise sensitivityMast cell (MCAS) & allergiesNeuropathy & tinglingSleep problemsTinnitusVision problems
Their words about their symptoms
- Headaches & migraine
headaches (particularly when looking at bright screens for too long)
In context ↗ - Brain fog
I still struggle with brain fog
In context ↗ - Tinnitus
Not as horrible as it once was but still comes and goes on my left ear
In context ↗ - Neuropathy & tingling
peripheral neuropathy (numbness and tingling)
In context ↗ - Flu-like symptoms
still just a fairly constant feeling like I’m slightly hungover
In context ↗ - Vision problems
floaters / aura in my eyes when looking at a TV / computer screen too long
In context ↗ - Mast cell (MCAS) & allergies
the issues I was having with histamine foods 6 months ago went away after taking fexofenadine and loratadine for several weeks
In context ↗ - Gut problems
They ended up doing a bit of a number on my stomach so I had to stop taking
In context ↗ - Light & noise sensitivity
Flares up if I have headphones on too loud or for too long
In context ↗ - Sleep problems
This has helped me recently https://www.quviviq.com
In context ↗