Long COVID with numbness, burning skin and tinnitus, much better but still fluctuating
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 11 months
- Last post
- Oct 2022
In their words
- Condition: Long COVID
Does this fit in long covid ?
In context ↗ - At worst: Moderate
Initial 5 months , every day new symptoms and no respite
In context ↗ - Now: Much better
I am having ups and down. 2 good weeks and bam 1 bad week and then another week of getting better
In context ↗ - Began after: COVID
After day or two full blown symptom of covid but doc said no need to get tested just rest and take treat symptoms.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
After a COVID infection in November 2021, Ridge 97641 developed spreading numbness and burning skin and later tinnitus, with new symptoms almost daily for the first five months. Amitriptyline gave a few good nights' sleep but withdrawal brought insomnia and migraine; a gluten-free diet helped briefly. By October 2022 they were much better than in May but still anxious, with numbness and fluctuating good and bad weeks.
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What they tried
What they credit
Also tried
Their words about each treatment
- Tylenol · Not said
Took Tylenol and Dayquil and NyQuil for a week and recovered from all covid symptoms.
In context ↗ - Aleve · Not said
took Aleve and within few hours face got numb
In context ↗ - Amitriptyline · Helped
I had few goodnights when started taking Amitriptyline for nerve pain
In context ↗ - Gluten free diet · Helped a lot
Gluten free diet solved many issues for 1st 2 weeks.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 1 month after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021-11-14 | COVID infection after 3rd shot; acute symptoms cleared in about a weekAfter day or two full blown symptom of covid but doc said no need to get tested just rest and take treat symptoms.In context ↗ | Not stated | |
| December 2021 | numbness and burning spread over the body; new symptoms dailyright hand got numb and for next month or so it almost spread on all over bodyIn context ↗ | Moderate | |
| May 2022 | burning in arms and legs stopped; skin burning subsidedAll of sudden after EMG and NCS, burning sensations in arms and legs went away.In context ↗ | Mild | |
| August 2022 | ringing started in right earIn August all of sudden got ringing ear in right ear.In context ↗ | Mild | |
| 2022-08-20 | stopped amitriptyline; withdrawal with no sleep and migrainedecided to got off Ami after almost 6 months ... No sleep, migraine etc hit pretty hard.In context ↗ | Mild | |
| October 2022 | felt like myselfGluten free diet solved many issues for 1st 2 weeks. In almost a year, I felt like myselfIn context ↗ | Near normal | Gluten-free diet |
| October 2022 | face and scalp numbness returned two weeks after feeling well2 weeks after that again face started getting numb and now scalp also started getting numb.In context ↗ | Mild | |
| 2022-10-18 | much better with good and bad weeks, still anxiousI am having ups and down. 2 good weeks and bam 1 bad week and then another week of getting betterIn context ↗ | Mild |
Adverse events
- Amitriptyline (Elavil)“Doctor did not warn off withdrawal symptoms and asked me to take 5 mg for 4 days and stop and that was crazy. No sleep, migraine etc hit pretty hard.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Also during this 11 months it takes forever to recover for small things.
In context ↗ - Sleep problems
Been barely getting 6 hours of sleep out of that 2 hours just twisting and turning.
In context ↗ - Pain & fibromyalgia
My thigh muscle is sore from stretching for now more than 2 weeks and neck is sore for 2-3 weeks.
In context ↗ - Headaches & migraine
No sleep, migraine etc hit pretty hard
In context ↗ - Neuropathy & tingling
Pins and needless keeps spreding in different parts of body every month but it stops after few week.
In context ↗ - Tinnitus
In August all of sudden got ringing ear in right ear.
In context ↗ - Temperature regulation
For past couple of weeks body seems much warmer.
In context ↗ - Anxiety & low mood
Since May'22 I am much better but very anxious.
In context ↗
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