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Long COVID Somewhat betterIll 14 months before improving or writing

Long COVID with GI problems, insomnia and pain, somewhat better after a PPI

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
14 months
Last post
Apr 2021
In their words
  • Condition: Long COVIDAt 12 months myself and still struggling with GI issues at this time. In context ↗
  • Now: Somewhat betterthe eye twitch/ear pain/jaw pain is mostly gone and reduced to left eye is sore and watery In context ↗
  • Began after: COVIDAt 12 months myself and still struggling with GI issues at this time. In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on

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Summary

A Reddit user described long COVID from about March 2020. Brain fog lasted no more than a month, but GI problems, insomnia, ear, jaw and throat pain and worsened tinnitus persisted past 12 months. GI scopes were clear, and a PPI was followed by longer stretches of feeling decent each day. By 14 months most pain had eased, though burning reflux-like chest pain remained; the first vaccine dose temporarily reactivated eye twitch/jaw pain for a few days, and the second brought sore cramped feet, but overall the vaccines left them no worse.

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What they tried

What they credit

Their words about each treatment
  • ppi · Helpedmonth later of the ppi, and I'm getting longer periods of time each day that I feel descent. In context ↗
  • COVID vaccine · Not saidIt was all getting better before the vaccine doses and the vaccine has either helped or not made it any worse. In context ↗

Approaches: Proton pump inhibitors

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
March 2020Long COVID onset; brain fog for the first monthThe brain fog didn't last more then one month for me. In context ↗Mild
2021-03-0212 months in with ongoing GI issues, insomnia and ear/jaw painAt 12 months myself and still struggling with GI issues at this time. In context ↗Mild
2021-03-16clear GI scopes and a PPI; longer decent stretches each daymonth later of the ppi, and I'm getting longer periods of time each day that I feel descent. In context ↗Mild
2021-03-17sleep and eyes betterit has gotten better for me recently and as a result my eyes seam better as well. In context ↗Mild
2021-03-17able to walk outside after the snow meltedour snow melted and I was able to get outside and walk for about a week. In context ↗Mild
2021-04-25most pain and throat pain gone, tinnitus fading; reflux-like chest pain remainsthe eye twitch/ear pain/jaw pain is mostly gone and reduced to left eye is sore and watery. Throat pain is also mostly gone. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogThe brain fog didn't last more then one month for me. In context ↗
  • Gut problemsstill struggling with GI issues at this time ... Biggest issue left for me at this point is the burning reflux like chest pains
  • Sleep problemssleep is super important, I don't know why exactly but it has gotten better for me recently In context ↗
  • TinnitusI had tinnitus years before all this started, it got worse with this In context ↗
  • Pain & fibromyalgiaThroat pain is also mostly gone. In context ↗

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