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Long COVID Moderate → no benefit

Long COVID with exercise intolerance and fatigue, unable to work, no improvement

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
Not stated
Last post
Oct 2021
In their words
  • Condition: Long COVIDI was surprised I got long covid. In context ↗
  • At worst: ModerateI can at least get out of bed every day and do things around the house and even walk a tiny bit. In context ↗
  • Began after: COVIDI got a breakthrough but I was surprised I got long covid. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Coast 71464 developed long COVID after a mild breakthrough infection despite vaccination. Their main symptom was exercise intolerance, with muscle pain, easy fatigue and breathlessness eased by a steroidal inhaler. They could get out of bed and do things around the house but could not work or exercise. They were trying a carnivore diet, probiotics, meditation, talk therapy and time outdoors, hoping inflammation would fade over months to a year.

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What they tried

Their words about each treatment
  • steroidal inhaler · HelpedI think I would still have some shortness of breath if not for using the steroidal inhaler In context ↗
  • carnivore diet · Not saidI’m doing a carnivore diet and lots of probiotics to see if I can bring down inflammation by healing my gut In context ↗
  • meditating daily · Not saidalso just meditating daily, doing talk therapy, sitting in nature as much as possible In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—Long COVID after mild breakthrough COVIDI got a breakthrough but I was surprised I got long covid. In context ↗Moderate
2021-10-23Still ill; can do things around house and walk a little but cannot work or exerciseI can at least get out of bed every day and do things around the house and even walk a tiny bit. ... I can’t work so I’m just opting not to . In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseThat’s really my main long haul symptom. ... If I start feeling better and go for a long walk, my lymph nodes will start hurting later. In context ↗
  • Pain & fibromyalgiaI have muscle pain. In context ↗
  • BreathlessnessI think I would still have some shortness of breath if not for using the steroidal inhaler. In context ↗
  • Flu-like symptomsmy lymph nodes will start hurting later In context ↗

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