Condition not stated
Moderate → somewhat betterIll 18 months before improving or writing
Exhausted by short walks and studying, now somewhat better at around 70% capacity
- Condition
- Condition not stated
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 18 months
- Last post
- Mar 2018
In their words
- Condition: Condition not stated
I am also not ready to call ME/CFS
In context ↗ - At worst: Moderate
In the acute phase I was very sick with fatigue, walking a short distance was exhausting, and studying was also.
In context ↗ - Now: Somewhat better
I function at about 70% of capacity but am unable to exercise without relapsing
In context ↗ - Began after: glandular fever or EBV
symptoms related to an EBV infection I had 1.5 years ago
Summary
Horizon 24844 fell ill after an EBV infection around 2016, when walking a short distance or studying left them exhausted. They recovered slowly, but each attempt to exercise, including running, brought the fatigue back and brought shortness of breath and chest pains. By early 2018, 18 months on, they put themselves at around 70% of capacity, still worked, could not exercise without relapsing, and had fatigue and cognitive problems on and off.
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What they tried
Also tried
Their words about each treatment
- exercise · Worse
I attempted exercise as usual. Those kept leading to recurrence of fatigue symptoms
In context ↗ - not exercising · Not said
unable to exercise without relapsing, so I don't do that so I can still manage working
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 4 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2016 | acute EBV infection, very sick with fatigueIn the acute phase I was very sick with fatigue, walking a short distance was exhaustingIn context ↗ | Moderate |
| months after onset | slow recovery with bouts of feeling normalI recovered slowly but surely, with bouts of return to normal, in which I attempted exercise as usualIn context ↗ | Near normal |
| — | relapse after attempting exercise as usual, with breathlessness and chest painsThose kept leading to recurrence of fatigue symptoms, and other symptoms such as shortness of breath and chest painsIn context ↗ | Mild |
| — | felt energetic, possibly a remissionI had maybe somewhat of a remission? I felt so energeticIn context ↗ | Near normal |
| — | relapsed after trying to get back into runningafter trying to get back into running i relapsed, leading to this up and down way of life with my energyIn context ↗ | Mild |
| March 2018 | about 70% of capacity, working, avoiding exercise to stay stable, symptoms on and offI function at about 70% of capacity but am unable to exercise without relapsingIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
am unable to exercise without relapsing
In context ↗ - Brain fog
suffer on and off with fatigue, cognitive impairment
In context ↗ - Breathlessness
other symptoms such as shortness of breath
In context ↗ - Heart symptoms & palpitations
chest pains that were ruled out to be cardiac in nature
In context ↗