Long COVID dizziness for two years, now near normal after bedrest and remdesivir
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2.5 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
I got long COVID after my first infection in 2021
In context ↗ - At worst: Mild
I would be struck by feelings of dread and unease just typing up typical work emails. It would also strike at night and keep me from sleeping.
In context ↗ - Now: Near normal
Took 2-3 years before the symptoms improved, still have some lingering stuff but I am close to how I was before I got it
In context ↗ - Began after: COVID
I got long COVID after my first infection in 2021
In context ↗
Read from 9 of their posts and comments; links to the 6 this page draws on
Summary
Dune 65264 got long COVID after a first infection in 2021; vertigo, dizziness, eye floaters, muscle twitching, palpitations, anxiety and insomnia plagued them for about two years before gradually weaning off. A January 2025 reinfection brought vertigo and palpitations back, and after 10 weeks of bedrest and remdesivir they settled within a few months. By early 2026 they were close to their pre-illness self, with lingering symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- Time · Helped a lot
Took 2-3 years before the symptoms improved, still have some lingering stuff but I am close to how I was before I got it
In context ↗ - rest / bedrest · Helped
I spent 6-8 weeks after the 2nd infection doing nothing but rest rest rest
In context ↗ - Remdesivir · Not said
I also got remdesiver treatment, wasn’t eligible for paxlovid
In context ↗ - break from exercising / resting until it eased · Helped
I took a break from exercising for 8 weeks (really any sort of strenous activity) after getting reinfected
In context ↗ - marijuana · Helped
in my case I avoid sativa and only take 2-3mg at a time as needed
In context ↗
Approaches: Pacing · Radical rest
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID after first COVID infectionI got long COVID after my first infection in 2021In context ↗ | Mild | |
| 2023 | symptoms gradually weaned off over about two yearsthe symptoms plagued me for 2 years then gradually weaned offIn context ↗ | Near normal | Time and spontaneous remission |
| January 2025 | COVID reinfection; vertigo and palpitations came backI got my 2nd infection in January of this year ... some LC symptoms still came back (vertigo, palpitations)In context ↗ | Mild | |
| 2025 | returned symptoms settled after bedrest and remdesivirthey weaned off again after a few monthsIn context ↗ | Near normal | Radical rest |
| 2026-01-24 | close to pre-illness self with some lingering symptomsstill have some lingering stuff but I am close to how I was before I got itIn context ↗ | Near normal |
Adverse events
- Cannabis (THC, marijuana)“it could also worsen high heart rate, anxiety and dizziness. I went from being able to handle 10-20mg to only 5mg and under.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
vertigo, muscle twitching, dizziness
In context ↗ - Neuropathy & tingling
muscle twitching
In context ↗ - Anxiety & low mood
my mental health took a nosedive
In context ↗ - Sleep problems
It would also strike at night and keep me from sleeping
In context ↗ - Brain fog
Sometimes I legit felt drunk though I hadn’t drank any alcohol
In context ↗
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