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Long COVID Mild → much betterIll 6 months before improving or writing

Long COVID brain fog, dizziness, now 80-90% after Parasym Plus and low-dose naltrexone

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
6 months
Last post
Mar 2024
In their words
  • Condition: Long COVIDAcupuncture kicked off my neuro/nervous system based LC. In context ↗
  • At worst: MildI need a nap by mid-day to make it thru the day. In context ↗
  • Now: Much betterI’m 80-90% most days. Still working on the nervous system. In context ↗
  • Began after: COVIDAcute infection July 2022
Read from 86 of their posts and comments; links to the 30 this page draws on

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Summary

Hill 98520 got COVID in July 2022 and long COVID from September, with brain fog, dizziness, high heart rate, tinnitus and visual snow; an October acupuncture session triggered a flare and an ER visit. They improved gradually with setbacks, crediting Parasym Plus for twitching, heart rate and fight-or-flight feelings, then low-dose naltrexone and nervous-system work. By September 2023 they were 80-90% most days, with some visual static left.

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What they tried

Their words about each treatment
  • paxlovid · HelpedTook paxlovid on second day of acute infection (July 2022) and felt like a million bucks. In context ↗
  • Prednisone · Not saidPrednisone helped me with that. In context ↗
  • acupuncture · Much worseYes I believe acupuncture flared everything and sent me to the ER. In context ↗
  • Oxytocin nasal spray (Oxy Pure) · HelpedI purchased Oxy Pure about a month ago and my tinnitus has decreased. In context ↗
  • physical therapy (general PT, vestibular PT, VRT) · HelpedI also was recently diagnosed with PPPD and have already seen improvements from physical therapy, 3-4 weeks now. In context ↗
  • natto/serra combo · Not saidI’m doing natto/serra combo for a couple of weeks now. Honestly not sure if it’s helping. In context ↗
  • Magnesium glycinate · HelpedMagnesium glycinate seems to help me some. In context ↗
  • H1 antihistamines · Not saidH1, H2 antihistamines, benfotiamine and B12 for nerve healing, oxytocin nose spray. In context ↗
  • Parasym Plus · HelpedStarted Parasym 3 weeks ago and have experienced noticeable improvement in twitching, bounding heart rate, constant feeling of flight or fight, fatigue, mood. In context ↗
  • exercise / moving around · HelpedThe more I move around, exercise, get blood moving, the better I feel. In context ↗
  • vasodilators · WorseI have pots like symptoms and have noticed the same with vasodilators. In context ↗
  • Xolair · Helped a lotNot from LC but did years back. Xolair put me in remission. In context ↗
  • LDN · HelpedLDN has also been helpful to me. In context ↗
  • frequent exposure (stores, YouTube) · HelpedYes. I have reduced my sensitivity in stores by doing frequent exposure and watching YouTube videos. In context ↗
  • Steady Coach · HelpedI’ve done VRT and am working on the steady coach stuff now. Definite improvement but want to get to 100%. In context ↗
  • yoga and pilates · Not saidBased on my experience, pilates is more strenuous than yoga. In context ↗
  • iron · Not saidAlso iron, vitamin d, b vitamins. In context ↗

Approaches: Brain retraining · Exercise and activity · Vagus nerve stimulation

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
July 2022first COVID infection; took Paxlovid on day twoFirst infection was July 2022. In context ↗
mid-October 2022acupuncture session flared everything and ended in an ER visitAcupuncture/ER visit mid-October that really set everything off. In context ↗
18 January 2023brain fog, high heart rate and fatigue improved while balance, lightheadedness and twitching worsenedHigh heart rate, brain fog and fatigue have improved. In context ↗
19 February 2023noticeable improvement in twitching, heart rate, fight-or-flight feelings, fatigue and moodStarted Parasym 3 weeks ago and have experienced noticeable improvement in twitching, bounding heart rate, constant feeling of flight or fight, fatigue, mood. In context ↗
23 March 2023felt like crap again after doing pretty okWas doing pretty ok and just feel like crap again. In context ↗
15 September 202380-90% most days while still working on the nervous systemI’m 80-90% most days. Still working on the nervous system. In context ↗
28 December 2023much better overall but nervous system still out of whackIt’s not gone but much better. My nervous system is still out of whack but I’m working on it. In context ↗
14 February 2024visual static no longer bothers them day to dayNo longer bothers me in my day to day. But if I focus on it, I still have some static and floaters. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogHigh heart rate, brain fog and fatigue have improved. In context ↗
  • POTS & dysautonomiaundiagnosed autonomic dysfunction, POTS like symptoms ... My nervous system is still out of whack but I’m working on it.
  • Heart symptoms & palpitationsnoticeable improvement in twitching, bounding heart rate In context ↗
  • Anxiety & low moodconstant feeling of flight or fight In context ↗
  • TinnitusImproved but not gone In context ↗
  • Light & noise sensitivitySound sensitivity is gone. In context ↗
  • Vision problemsNo longer bothers me in my day to day. But if I focus on it, I still have some static and floaters. In context ↗

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