ME/CFS
Very severe → recoveredIll 2 months before improving or writingNeeds ongoing treatment
Bedbound with ME/CFS, now recovered after mind-body work and LDN
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 2 months
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I instantly realised this was my CFS returning from 10 years ago, but in a much more severe state.
In context ↗ - At worst: Very severe
I hired a caregiver to feed me three times a day. I stopped speaking to conserve energy.
In context ↗ - Now: Recovered
I’d say 100% recovered at this point.
In context ↗ - Began after: stress or burnout
a combination of stress, work burnout, drugs, alcohol, viral infection, etc.
Read from 71 of their posts and comments; links to the 19 this page draws on
Summary
A man first ill with CFS/ME around 2015 recovered after about 18 months, then relapsed in mid-2025 and became bedbound, needing a caregiver to feed him. He credited mind-body and nervous system work, Primal Trust, LDN, later IFS therapy and JournalSpeak for gains from August 2025, despite a severe crash in March 2026. By June 2026 he reported 100% recovery, working and exercising normally, with occasional head pressure remaining.
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What they tried
What they credit
meditation, yoga nidra and breathwork· Helped a lotreacting positively to symptoms / fearlessness· Helped a lotPrimal Trust· Helped a lot · mainIFS / parts work· Helped a lotJournalSpeak (Nicole Sachs) and Sarno/TMS work· Helped a lot · mainPsyllium Husk· HelpedMilk Thistle· HelpedZMA· HelpedVitamin C· HelpedLecithin· HelpedTaurine· HelpedFish Oil· HelpedVitamin B Complex· HelpedDigestive Enzymes· HelpedChlorella· HelpedDandelion Root· HelpedGarlic· HelpedTurmeric Curcumin· HelpedEchinacea· HelpedGrapefruit Seed Extract· HelpedProbiotic· HelpedVitamin D3· HelpedGlutamine· Helpedquitting carbs, sugar, alcohol; autoimmune diet· Helpedquitting carbs, sugar, alcohol; autoimmune diet· Helpedquitting carbs, sugar, alcohol; autoimmune diet· Helpedcompression boots· HelpedLDN· Helpedcold showers / cold plunge· HelpedEFT tapping and somatic emotional release· HelpedVNS, gargling and humming· Helpedtonsillectomy· Helpedgetting back into exercise (rowing, kettlebells, basketball)· Helped
Also tried
30+ supplements (Sarah Myhill protocol + bunch others)· Helpednervous system retreat in Bali· Helpedantibiotics· Helpedpacing· No changeaggressive resting· Not saidvitamin B injections· Not saidMcCullough protocol· Not saidhyperbaric oxygen therapy· Not said
Their words about each treatment
- Psyllium Husk · Helped
I've seen dramatic improvement in my symptoms
In context ↗ - quitting carbs, sugar, alcohol; autoimmune diet · Helped
quitting carbs, sugar, alcohol, drugs, etc. for prolonged periods ... autoimmune diet
- meditation, yoga nidra and breathwork · Helped a lot
daily nervous system regulation work (vagus nerve, cold exposure, meditation, yoga nidra, breathwork, eye yoga, etc.)
In context ↗ - compression boots · Helped
Then tried the boots for the first time. Felt good.
In context ↗ - aggressive resting · Not said
I got a heart rate monitor, subscribed to r/cfs, started “aggressively resting”
In context ↗ - pacing · No change
The moment I quit the whole “pacing” mentality and started living life / experiencing joy, I got way way better.
In context ↗ - reacting positively to symptoms / fearlessness · Helped a lot
Reacting positively to symptoms ... and instantly I noticed about a 10% improvement in my symptoms
In context ↗ - LDN · Helped
getting on to daily LDN ... LDN was a very small part of my puzzle.
- 30+ supplements (Sarah Myhill protocol + bunch others) · Helped
autoimmune diet, compression boots, and about 40 supplements
In context ↗ - vitamin B injections · Not said
vitamin B injections
In context ↗ - McCullough protocol · Not said
McCullough protocol
In context ↗ - Primal Trust · Helped a lot
I started Primal Trust ... I just completed Level 1 and am 90% recovered, almost a miracle how well it worked.
- cold showers / cold plunge · Helped
Cold shower / plunge, meditation, yoga nidra, breathwork
In context ↗ - EFT tapping and somatic emotional release · Helped
Daily release of suppressed emotions is allowing for massive increases in activity and also a huge reduction in symptoms.
In context ↗ - VNS, gargling and humming · Helped
gargling, humming, singing
In context ↗ - IFS / parts work · Helped a lot
I started working once a week with an IFS practitioner and that was fucking game changing.
In context ↗ - nervous system retreat in Bali · Helped
I flew to a nervous system retreat in Bali ... Incredibly incredibly healing.
In context ↗ - tonsillectomy · Helped
Fixing sleep apnea via tonsillectomy
In context ↗ - JournalSpeak (Nicole Sachs) and Sarno/TMS work · Helped a lot
I started two months ago when I was 90% recovered ... I am now at 100% and can workout as normal.
In context ↗ - hyperbaric oxygen therapy · Not said
I also did 10 sessions of daily hyperbaric oxygen therapy immediately after surgery.
In context ↗ - getting back into exercise (rowing, kettlebells, basketball) · Helped
started to get brave and start rowing on a concept machine at the gym. Rowed for 5 mins. No PEM next day or day after.
In context ↗ - antibiotics · Helped
Yes seems I have laryngitis which doc has prescribed antibiotics for and I’m already starting to feel more normal.
In context ↗
Approaches: CBT & mindset · POTS medication · Alternative therapies · Amino acids and carnitine · Brain retraining · Diet · Exercise and activity · Mind-body practices · Supplements · Surgery & structural · Trauma & somatic work · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2015 | CFS/ME began after stress, burnout, drugs, alcohol and a viral infectiondeveloped CFS/ME roughly 10 years ago ... was mild to moderate, that lasted 1.5 years | Moderate | |
| 2016-01-24 | reported a dramatic improvement on a large supplement stackI've seen dramatic improvement in my symptomsIn context ↗ | Not stated | |
| 2017 | first episode faded on its own after about 1.5 yearsAfter 1.5 years it just disappeared and I don’t know exactly what helped. Maybe just time.In context ↗ | Recovered | |
| May 2022 | CFS symptoms returned after a Covid infectionRecently got Covid and CFS symptoms have all come back.In context ↗ | Not stated | |
| September 2023 | back to 100% normality after a few months of healthy eating, sleep, exercise and no alcohol, sugar, caffeine or drugsBack to 100% normalityIn context ↗ | Recovered | |
| June 2025 | PEM crash after a 15-minute swim, symptoms worsening over two weeks2 days later, PEM hit me hard ... It’s been over 2 weeks and it’s continuing to get worse.In context ↗ | Moderate | |
| July 2025 | bedbound, unable to move or speak, caregiver feeding himI hired a caregiver to feed me three times a day. I stopped speaking to conserve energy.In context ↗ | Very severe | |
| August 2025 | reading mind-body recovery literature, first 10-20% improvement but still housebound and in constant PEMBy end of August I was 15-20% better, but still housebound and aggressively resting and pacingIn context ↗ | Severe | Sarno / TMS / somatic tracking / JournalSpeak |
| September 2025 | started Primal Trust, 3-5 hours daily regulation, first 2-minute walks outsideI was now 30% better.In context ↗ | Severe | |
| October 2025 | working 3-4 days a week from the office, short walks and outings, dating againI was now 40% better.In context ↗ | Moderate | |
| November 2025 | working full-time, 6-7k steps daily, carrying symptoms but not fearing themMaybe 50% better at this point.In context ↗ | Mild | |
| December 2025 | weekly IFS practitioner, 10k steps regularly, PEM starting to subsideMaybe 60% better at this point.In context ↗ | Mild | CBT and psychotherapy |
| January 2026 | full-time work with HRV breathing breaks, 12k steps a day, still unable to work outI felt 70% recovered.In context ↗ | Mild | CBT and psychotherapy |
| February 2026 | crashed after a work trip, meetings and successive mountain hikesI was down with heavy and intense flu / fatigue / PEM / migraines for two weeks.In context ↗ | Moderate | |
| February 2026 | came out of the crash stronger after reacting calmly to symptomsI came out of the crash stronger and was 80% recovered at this point.In context ↗ | Mild | |
| March 2026 | crashed badly after a work trip, almost bedridden, with laryngitisAfter a recent work trip I’ve crashed badly and have a boatload of debilitating symptoms and almost bedridden again.In context ↗ | Severe | |
| April 2026 | daily JournalSpeak, tonsillectomy for sleep apnoea and hyperbaric oxygen sessionsI was now at 90% recovery.In context ↗ | Near normal | Sarno / TMS / somatic tracking / JournalSpeak |
| May 2026 | rowing up to 20 minutes with no PEM, 11-13k steps, travel and social life90-95% recovered on my books.In context ↗ | Near normal | Sarno / TMS / somatic tracking / JournalSpeak |
| June 2026 | rowing 30 minutes several times a week, kettlebells, basketball and swimming with zero PEMI’d say 100% recovered at this point.In context ↗ | Recovered | Sarno / TMS / somatic tracking / JournalSpeak |
| 2026-07-12 | living a normal life and doing intense circuit training; occasional head pressure onlyI did a super intense HIIT style circuit training earlier today, feel absolutely fine.In context ↗ | Recovered |
Adverse events
- Sarno / TMS / somatic tracking / JournalSpeak“Yes my symptoms got louder after doing it” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Brain fog
intense head pressure, inflammation, brain fog
In context ↗ - POTS & dysautonomia
POTS, dizziness, tachycardia
In context ↗ - Sleep problems
nausea, insomnia, intense head pressure
In context ↗ - Headaches & migraine
I still feel head pressure sometimes during the day
In context ↗ - Light & noise sensitivity
sensitivity to light
In context ↗ - Flu-like symptoms
if I push too much I can get quite fluey
In context ↗ - Neuropathy & tingling
head creepy crawly thingy
In context ↗ - Anxiety & low mood
anxiety has gone down
In context ↗
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