Long COVID
Severe → recoveredIll 18 months before improving or writing
Barely able to walk and unable to work with long COVID, now recovered with hydration and daily walks
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I got sick in March of 2020, the long haul began a month after
In context ↗ - At worst: Severe
I could barely walk for months, couldn't lift weight without feeling like sleeping all day afterwards
In context ↗ - Now: Recovered
Yes I am 100% better now!
In context ↗ - Began after: COVID
My covid was extremely mild, just a cough with slight SOB.
In context ↗
Read from 95 of their posts and comments; links to the 40 this page draws on
- Feb 2021
- Feb 2021
- Aug 2024
- Feb 2021
- Dec 2020
- Dec 2020
- Dec 2020
- Feb 2021
- Dec 2020
- Feb 2021
- Jan 2021
- Jan 2021
- Dec 2020
- May 2021
- Jun 2021
- Feb 2021
- May 2022
- Jul 2021
- Jul 2021
- May 2021
- Aug 2024
- Apr 2021
- Jun 2021
- Dec 2021
- May 2022
- Mar 2021
- Feb 2021
- Apr 2021
- Jun 2021
- Apr 2021
- Dec 2020
- Jun 2021
- Jun 2021
- May 2022
- Mar 2021
- Jan 2021
- Jun 2021
- Aug 2021
- Feb 2021
- Dec 2020
Summary
Dew 68129, an Arizona man, had mild COVID in March 2020 and was left barely able to walk, short of breath and unable to work for months, with POTS, palpitations and gut problems. He improved gradually with hydration, electrolytes, reflux treatment, diet and daily walks; his first Pfizer dose cleared most breathlessness, and the second caused headaches and a racing heart for about three weeks. He reported being 100% better in 2024.
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What they tried
What they credit
Prilosec (omeprazole)· Helped a lot · mainWalking and graded exercise· Helped a lotGetting more sleep· Helped a lotNo gluten, dairy or added sugar diet (and low FODMAP)· Helped a lotNo gluten, dairy or added sugar diet (and low FODMAP)· Helped a lotNo gluten, dairy or added sugar diet (and low FODMAP)· Helped a lotNo gluten, dairy or added sugar diet (and low FODMAP)· Helped a lotVitamin D3· HelpedStopping before too tired / not overexerting· Helped
Also tried
Eating more calories / milkshakes· Helped a lotWater, electrolytes, salt and compression socks· Helped a lotWater, electrolytes, salt and compression socks· Helped a lotPfizer vaccine· Helped a lotPepcid AC / famotidine· HelpedEating carbs· HelpedCBD oil· Helped5-HTP· HelpedSAMe· HelpedMelatonin· HelpedLotrimin (topical antifungal)· HelpedProbiotic pills and Greek yogurt· HelpedTums (calcium carbonate)· HelpedHigh-absorption magnesium· HelpedFiber· HelpedGag reflex / cold water face splash· HelpedIntermittent fasting· HelpedBreathing exercises and managing anxious thoughts· HelpedLow histamine diet· No changeClaritin / loratadine· WorseIbuprofen· Not saidCipro (antibiotic)· Not said
Their words about each treatment
- Prilosec (omeprazole) · Helped a lot
PPI was a lifesaver for me
In context ↗ - Pepcid AC / famotidine · Helped
I switched to Pepcid AC 40mg a day ... My acid reflux is in control now
In context ↗ - Eating carbs · Helped
I seem to feel better after eating carbs, it helps with my heart palpitations and gives me energy after a walk
In context ↗ - Eating more calories / milkshakes · Helped a lot
I feel much better now that I'm taking in my daily calories
In context ↗ - Walking and graded exercise · Helped a lot
I worked my way up with walks ... as long as I stopped before I got too tired
In context ↗ - Getting more sleep · Helped a lot
The key for me was ... getting more sleep
In context ↗ - No gluten, dairy or added sugar diet (and low FODMAP) · Helped a lot
No gluten, no dairy and no added sugars has been helping me immensely ... a low Fodmap diet, which has helped me
- Low histamine diet · No change
Low histamine diet didn't work for me
In context ↗ - Water, electrolytes, salt and compression socks · Helped a lot
Taking in more water and electrolytes has helped so far at least with the cardiac symptoms
In context ↗ - Vitamin D3 · Helped
I’ve been taking 10,000 a day and I think it’s helped me a lot
In context ↗ - CBD oil · Helped
I also take CBD oil daily. It helps most with anxiety
In context ↗ - 5-HTP · Helped
5-HTP and SAMe have helped me immensely with happiness and overall feelings of anxiety
In context ↗ - Melatonin · Helped
Just 3mg a night worked for me
In context ↗ - Ibuprofen · Not said
Ibuprofen for headaches
In context ↗ - Lotrimin (topical antifungal) · Helped
I’ve been using lotrimine, and so far it’s working
In context ↗ - Probiotic pills and Greek yogurt · Helped
Probiotic pills never worked for me, but Greek yogurt daily helped a huge amount
In context ↗ - Tums (calcium carbonate) · Helped
took 4 tums and it went away within a few minutes
In context ↗ - Claritin / loratadine · Worse
Antihistamines were messing me up and causing dry throat and chest pain
In context ↗ - Pfizer vaccine · Helped a lot
First dose of Pfizer got rid of 80-90% of my shortness of breath
In context ↗ - High-absorption magnesium · Helped
For extreme constipation I took 100mg of high-absorption magnesium every day
In context ↗ - Fiber · Helped
Bowel movements helped me immensely for some reason so I ate fiber and magnesium
In context ↗ - Cipro (antibiotic) · Not said
My dr. also gave me an anti-biotic (cipro) and I finished it, but not sure that's what helped
In context ↗ - Stopping before too tired / not overexerting · Helped
walks seemed to be fine as long as I stopped before I got too tired
In context ↗ - Gag reflex / cold water face splash · Helped
Practicing gag reflex every day has helped me with a lot of symptoms
In context ↗ - Intermittent fasting · Helped
I found intermittent fasting helped with the head pressure
In context ↗ - Breathing exercises and managing anxious thoughts · Helped
The things that helped were just trying to breathe and not thinking about doom and gloom all the time
In context ↗
Approaches: Proton pump inhibitors · Diet · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2020 | Mild COVID-19; long haul began a month laterMy covid was extremely mild, just a cough with slight SOB.In context ↗ | Mild | |
| spring 2020 | Could barely walk, always short of breath, unable to workI could barely walk for months, couldn't lift weight without feeling like sleeping all day afterwards.In context ↗ | Severe | |
| mid July 2020 | Second round of symptoms; worst of it lasted until about Septemberit started in mid July 2020 but the worst of it lasted until September or soIn context ↗ | Moderate | |
| December 2020 | About 90-95% better; walking 6-10k steps a dayI’ve been around 90-95%.In context ↗ | Mild | |
| 14 February 2021 | Walked/jogged 25,000 steps, said he was in the best shape of his lifeToday I walked/jogged 25,000 steps and burned over 1,000 calories, I’m probably in the best shape of my life.In context ↗ | Near normal | Graded exercise therapy (GET) |
| May 2021 | Crashed after second Pfizer dose: migraines, head pressure, heart rate up 10-15 bpmthe 2nd dose caused this plus intense migraines and pressure headachesIn context ↗ | Mild | |
| 7 June 2021 | Almost 100% recovered, only mild POTS and occasional mild headache leftI can finally say that I'm almost 100% recovered now.In context ↗ | Near normal | |
| 27 June 2021 | Mild relapseI’ve relapsed, but it wasn’t bad.In context ↗ | Mild | |
| May 2022 | About 95% cured; still occasional head pressure and mild POTSAfter long hauling for almost 2 years, I can now say I’m about 95% cured.In context ↗ | Near normal | |
| August 2024 | Reported being 100% betterYes I am 100% better now!In context ↗ | Recovered |
Adverse events
- Famotidine (Pepcid)“My acid reflux is in control now but was pretty bad during the transition for a week or so.” In context ↗ Made symptoms worse
- Probiotics and fermented foods“If I take them I get horrendous gas that never ends, and the bloating is extremely painful and even caused tachycardia for me.” In context ↗ Gut side effects
- Famotidine (Pepcid)“my GERD and acid got so bad (even after taking 60mg a day), my digestion just shut down completely I couldn't eat hardly anything and I even lost 20 lbs in a week or two” In context ↗ Made symptoms worse
- Omeprazole (Prilosec)“What's weird is I took 2 by accident one time and the headaches were unbearable.” In context ↗ Side effects
- COVID vaccination as treatment“I felt amazing after the first dose, but the 2nd dose caused this plus intense migraines and pressure headaches.” In context ↗ Side effects
- COVID vaccination as treatment“On my 2nd Pfizer shot my HR also shot up, and even my resting heart rate at night jumped about 10-15 bpm.” In context ↗ Heart rhythm problems
- Loratadine (Claritin)“Antihistamines were messing me up and causing dry throat and chest pain. Now off them I am way better” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseTemperature regulationTinnitus
Their words about their symptoms
- Post-exertional malaise
I started off with a dry cough, bronchitis-like symptoms, extreme fatigue, PEM, IBS-like symptoms, palpitations, and tachycardia.
In context ↗ - POTS & dysautonomia
I also got POTS, but it has improved in the last 3-4 months.
In context ↗ - Heart symptoms & palpitations
I get random tachycardia, blood pressure changes, and chest pains.
In context ↗ - Headaches & migraine
I had constant vascular headaches but found that they were linked to my throat and stomach somehow.
In context ↗ - Gut problems
My GI issues have finally gone away now, I can eat gluten now, too.
In context ↗ - Breathlessness
First dose of Pfizer got rid of 80-90% of my shortness of breath
In context ↗ - Neuropathy & tingling
I had some neuropathy in my toes and hands that started around that time, about 4-5 months in and that’s gone away about 90%.
In context ↗ - Tinnitus
I had it for a day or so, and it was gone the next day
In context ↗ - Anxiety & low mood
I was horribly depressed with the fatigue and tachycardia/bradycardia.
In context ↗ - Temperature regulation
No fever, but I had excessive sweating.
In context ↗
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