ME/CFS
Severe → no benefitIll for 13 years
ME/CFS with greatly reduced energy, cannabis and CBD gave no overall benefit
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 13 years
- Last post
- Jul 2026
In their words
- Condition: ME/CFS
I'm really having trouble getting my care team to understand the severity of my CFS.
In context ↗ - At worst: Severe
my energy envelope is greatly reduced and I'm bumping into severe
In context ↗ - Now: No benefit
I can see a slow and steady decline in overall health from 2013 to 2021 then it became faster until now.
In context ↗ - Began after: nothing they could name
I can see a slow and steady decline in overall health from 2013 to 2021
Read from 16 of their posts and comments; links to the 10 this page draws on
Summary
Meadow 68044 describes a slow decline in health from 2013, with an ME/CFS diagnosis in 2022, and by 2026 a greatly reduced energy envelope, bumping into severe. Cannabis, CBD and psilocybin microdoses eased pain, sleep and mood but were not a cure. A medication improved nerve pain somewhat but worsened brain fog and fatigue too much to tolerate. A VA physical therapy stress test caused severe PEM.
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What they tried
Also tried
Weed / THC strains, flower, vape and edibles (with RSO)· HelpedCBD· HelpedShrooms (psilocybin mushrooms), microdosed· HelpedPacing· HelpedPhysical therapy with walking stress test· WorsePregabalin· Worse
Their words about each treatment
- Weed / THC strains, flower, vape and edibles (with RSO) · Helped
find it helpful with pain and mental fogginess ... being high makes it suck a little less
In context ↗ - CBD · Helped
I find adding the CBD enhances the pain relief without needing to get too high. It also helps with anxiety and paranoia
In context ↗ - Shrooms (psilocybin mushrooms), microdosed · Helped
I've been microdosing for a few months and have been seeing mild symptom improvement and a better mood.
In context ↗ - Physical therapy with walking stress test · Worse
I did 2 minutes and my heart rate was over 140. ... I had severe PEM following this appointment
In context ↗ - Pacing · Helped
I'm just now getting a handle on what I need to do in terms of pacing, diet, supplements, medications, etc and seeing a settling into a stable baseline
In context ↗ - Pregabalin · Worse
It did improve my nerve pain somewhat but not enough to tolerate the much worse brain fog and fatigue it caused for me.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 13.3 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2013 | slow steady decline in health beganI can see a slow and steady decline in overall health from 2013 to 2021 then it became faster until nowIn context ↗ | Not stated |
| 2021 | decline became faster | Not stated |
| 2026-05-03 | severe PEM after VA physical therapy stress testI did 2 minutes and my heart rate was over 140. The doctor wanted me to push to 6 minutes. I had severe PEM following this appointmentIn context ↗ | Moderate |
| 2026-06-13 | crashed after camping and astrophotography tripI'm currently in bed recovering and the pain was pretty bad while I was down thereIn context ↗ | Moderate |
| 2026-06-16 | stable baseline but energy envelope greatly reduced, bumping into severeseeing a settling into a stable baseline. Unfortunately it's far too late and my energy envelope is greatly reduced and I'm bumping into severeIn context ↗ | Severe |
| 2026-07-30 | still using cannabis and CBD for pain and sleepI use weed and CBD and it helps with pain and sleepIn context ↗ | Severe |
Adverse events
- Physical therapy / physiotherapy“I had severe PEM following this appointment, predictively and I told the doctor before that it would cause me physical harm.” In context ↗ Made symptoms worse
- Pregabalin (Lyrica)“It did improve my nerve pain somewhat but not enough to tolerate the much worse brain fog and fatigue it caused for me.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Post-exertional malaise
I had severe PEM following this appointment, predictively and I told the doctor before that it would cause me physical harm
In context ↗ - Pain & fibromyalgia
I use weed and CBD and it helps with pain and sleep
In context ↗ - Sleep problems
I have found that strains like Granddaddy Purple, GSC, Sharksbreath, Blue Dream, and Lemon Meringue to help with pain and aid in sleep
In context ↗ - POTS & dysautonomia
I have a shower stool and only stand up to get wet and rinse off but even then my heart rate goes over 160
In context ↗ - Heart symptoms & palpitations
I did 2 minutes and my heart rate was over 140
In context ↗ - Neuropathy & tingling
It did improve my nerve pain somewhat
In context ↗ - Anxiety & low mood
It also helps with anxiety and paranoia, I have PTSD so straight THC is too much for me
In context ↗