ME/CFS with brain fog and dizziness, somewhat better after Flovent and trace minerals
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2024
In their words
- Condition: ME/CFS
before chronic fatigue I had a lot of heat tolerance and after I run very cold
In context ↗ - At worst: Mild
I still had to pace myself to not overdo physical activity
In context ↗ - Now: Somewhat better
Pacing is still important to maintaining any improvement but it’s really nice to feel like I have some of my mind back
In context ↗
Read from 11 of their posts and comments; links to the 9 this page draws on
Summary
Reddit user with chronic fatigue reported brain fog, sensory overload, dizziness, vertigo and aching muscles. They paced with a Garmin watch and credited Flovent with helping all their symptoms, trace minerals with the biggest gain in brain fog and overload, and magnesium with a tired-but-wired feeling. Sauna and dry brushing eased aches and sleep. Wisdom-tooth anaesthesia left them unusually rested on waking, with brain fog reduced for a couple of days.
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What they tried
What they credit
Also tried
Their words about each treatment
- electrolytes · Helped
adding electrolytes to your water, it’ll help you rehydrate and stay hydrated for longer, I also lean dehydrated and those really helped me
In context ↗ - Flovent hfa · Helped a lot
Flovent hfa has really helped all of my symptoms , and that is a corticosteroid
In context ↗ - sauna · Helped
it helps improve the quality of my sleep, and also helps with tense achy muscles
In context ↗ - rest and pacing · Helped
rest seems to help though ... Pacing is still important to maintaining any improvement
- Garmin vivosmart 5 · Helped
By making me more aware of how taxing everyday activities were I was able to actually pace better
In context ↗ - dry brushing · Helped
I actually use dry brushing while I’m in pem to help with the body aches
In context ↗ - theragun massage · Helped
some dry brushing or even a theragun message helps me relax and get some sleep
In context ↗ - trace minerals concentrate · Helped a lot
more than any supplement I’ve taken supplementing trace minerals has done the most for my brain fog and sensory overload
In context ↗ - magnesium · Helped
Magnesium supplements have helped me the most with that tired but wired feeling
In context ↗
Approaches: Other drugs and medicines · Pacing · Supplements
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | onset of chronic fatigue (timing not given)before chronic fatigue I had a lot of heat tolerance and after I run very coldIn context ↗ | Not stated |
| 2023-06-05 | inhaled corticosteroid helped all symptomsFlovent hfa has really helped all of my symptomsIn context ↗ | Not stated |
| 2024-02-28 | trace minerals improved brain fog and sensory overloadsupplementing trace minerals has done the most for my brain fog and sensory overloadIn context ↗ | Not stated |
| 2024-03-27 | felt unusually rested with less brain fog for a couple of days after anaesthesiathe brainfog was really greatly reduced for a couple daysIn context ↗ | Not stated |
| 2024-03-27 | still pacing day to day, some of their mind backPacing is still important to maintaining any improvement but it’s really nice to feel like I have some of my mind backIn context ↗ | Mild |
Adverse events
- “besides a bad reaction to some of the muscle relaxants” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
done the most for my brain fog and sensory overload
In context ↗ - POTS & dysautonomia
initially to help with dizziness and vertigo
In context ↗ - Pain & fibromyalgia
the pain can make it hard to relax or get any rest
In context ↗ - Muscle weakness
I relate to that very weak, kind of high, just not fully there feeling
In context ↗ - Post-exertional malaise
I treat these feelings as a: you’ve really gone overboard now sort of pem
In context ↗ - Sleep problems
it helps improve the quality of my sleep
In context ↗ - Temperature regulation
after I run very cold
In context ↗
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