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ME/CFS Outcome unclear

ME/CFS with PEM from housework, working from home; ketamine eased pain, fatigue slightly

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Jun 2026
In their words
  • Condition: ME/CFSmy ME/CFS symptoms don’t hit as hard if that makes sense In context ↗
  • At worst: MildI have a flexible work from home job and simple hobbies I can do at my desk or in bed. ... I’m also a dance teacher. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Puffin 26140 has ME/CFS with PEM from housework and cooking; their partner now does those tasks, and they work from home and teach dance, resting between classes. High-dose intramuscular ketamine every six months eased chronic pain, depression and OCD but helped fatigue only slightly. Surgery and an IUD for a bicornuate uterus, after 271 days of bleeding in 2022-23, improved their quality of life.

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What they tried

Their words about each treatment
  • high dose intramuscular ketamine · HelpedIt helps a lot with my chronic pain and treatment resistant depression and ocd. It helps a bit with fatigue but not much. In context ↗
  • surgery to cut out the uterine septum · HelpedI had a small surgery to cut out the septum in my uterus and make it one uterine cavity instead of two. In context ↗
  • iud · HelpedThen I also had an iud inserted to help lessen that bleeding as well. It helped a lot. In context ↗
  • partner doing housework and resting between classes · HelpedThose things were huge PEM causes for me so that has helped me a lot In context ↗
  • shower chair · HelpedA shower chair. In context ↗
  • hydrating a lot with juice flavouring in water · HelpedPutting a little bit of those squeezy juice flavour things in my waters makes it way more palatable and I am so much more hydrated now. In context ↗
  • small amount of caffeine · HelpedSmall amount of caffeine in the mornings really helps me. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
—ME/CFS; housework, laundry and cooking caused PEMThose things were huge PEM causes for me In context ↗Not stated
2026-01-23ketamine eased chronic pain, depression and OCD, fatigue only a bitIt helps a lot with my chronic pain and treatment resistant depression and ocd. It helps a bit with fatigue but not much. In context ↗Not statedKetamine
2026-06-22coping with partner's help, rest between dance classes, shower chairI have a flexible work from home job and simple hobbies I can do at my desk or in bed. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseThose things were huge PEM causes for me In context ↗
  • Pain & fibromyalgiaIt helps a lot with my chronic pain In context ↗
  • Anxiety & low moodIt helps a lot with my chronic pain and treatment resistant depression and ocd In context ↗
  • Brain fogI’ve found a balance that really helps me feel clear headed In context ↗

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