Housebound or bedbound with ME/CFS, somewhat better after H. pylori eradication
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Apr 2025
In their words
- Condition: ME/CFS
alongside ME/CFS
In context ↗ - At worst: Severe
moderate/severe and housebound/bedbound now
In context ↗ - Now: Somewhat better
I'm slowly recovering after hpylori eradication
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Shore 44895, who has ME/CFS and POTS, was previously at the high end of moderate and could go outside for 2-4 hours a day. Eight months before April 2025 they caught H. pylori and became moderate/severe, housebound or bedbound, with worse POTS and a deregulated sympathetic nervous system. After eradicating the infection two months before the comment, they were slowly getting better but still recovering.
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What they tried
What they credit
Their words about each treatment
- antibiotics / hpylori eradication · Helped
I eradicated it two months ago, and its slooooowly getting better
In context ↗
Approaches: Antibiotics
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| before 8 months ago | previously high end of moderate, outside 2-4 hours a daypreviously high end of moderate and could go outside for 2-4 hours a day and do stuffIn context ↗ | Moderate |
| 8 months ago | caught H. pylori; became housebound/bedboundcaught hpylori 8 months ago and have been moderate/severe and housebound/bedbound nowIn context ↗ | Severe |
| 2025-04-23 | slowly recovering after H. pylori eradicationI eradicated it two months ago, and its slooooowly getting betterIn context ↗ | Severe |
Adverse events
- Antibiotics (unspecified)“I'm slowly recovering after hpylori eradication, but its completely deregulated my sympathetic nervous system and made my POTS worse, alongside ME/CFS.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
completely deregulated my sympathetic nervous system and made my POTS worse
In context ↗ - Gut problems
What matters most with gastric issues is to remain calm and reduce stress by any means possible.
In context ↗
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