ME/CFS fatigue cleared after stopping quetiapine, then returned with weakness, dizziness
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- months
- Last post
- May 2020
In their words
- Condition: ME/CFS
Thought I solved my fatigue problems YEARS ago, now back out of nowhere.
In context ↗ - At worst: Moderate
Often standing or even sitting up for long periods of time can feel very draining and lead to worsening of other symptoms.
In context ↗ - Now: Relapsed
This problem was SOLVED. It was gone. ... Fastforward to today and it's back.
In context ↗ - Began after: nothing they could name
For months we did a myriad of tests and diet tweaks and the like and couldn’t figure out what was wrong.
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Birch 69567 developed fatigue about three years before their May 2020 post; months of tests found only low vitamin D and B12. Stopping quetiapine cleared it very quickly. The fatigue returned out of nowhere in 2020 with weakness, palpitations, breathlessness and dizziness on moving, and they were mostly resting to avoid pushing themselves while searching for a doctor.
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What they tried
What they credit
Also tried
Their words about each treatment
- diet tweaks · Not said
we did a myriad of tests and diet tweaks and the like and couldn’t figure out what was wrong
In context ↗ - Vit D · Helped
a bit of deficiency in Vit D and B12, so I started taking those supplements, which helped for a while, but not completely
In context ↗ - B12 · Helped
Only thing they found was a bit of deficiency in Vit D and B12, so I started taking those supplements, which helped for a while, but not completely
In context ↗ - Quetiapine (Seroquel) · Worse
I saw my psychiatrist and got off of my bipolar medication at the time Quetiapine. Very quickly after that I was fine!
In context ↗ - Pacing and the energy envelope · Not said
I know pushing myself is the absolute worst thing I could do, so I’ve mostly just been laying around
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 3 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 3 years before May 2020 | fatigue began, months of tests found nothingAbout 3 years ago I started having issues with fatigue.In context ↗ | Not stated |
| after months of tests, ~2017 | stopped quetiapine and fatigue cleared quicklyVery quickly after that I was fine! Problem solved, it was my medicationIn context ↗ | Recovered |
| 2020 | fatigue returned out of nowhereFastforward to today and it’s back. Seemingly out of nowhere.In context ↗ | Moderate |
| 2020-05-31 | weak and mostly resting, looking for a doctorso I’ve mostly just been laying aroundIn context ↗ | Moderate |
Adverse events
- Quetiapine (Seroquel)“I’d been having issues with heart palpitations even before all this went down (likely also because of the medication).” In context ↗ Heart rhythm problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I know pushing myself is the absolute worst thing I could do
In context ↗ - Muscle weakness
Overall I feel very weak, like it takes more effort to do stuff than it should.
In context ↗ - POTS & dysautonomia
I do also tend to get woozy/dizzy/vertigo/whatever (sorry, still unsure about the distinctions) sometimes when moving
In context ↗ - Breathlessness
When I get weak I feel like I’m having a hard time breathing
In context ↗ - Heart symptoms & palpitations
Heart palpitations are back.
In context ↗ - Neuropathy & tingling
Occasional tingly/fuzzy feeling in my head and brain.
In context ↗ - Anxiety & low mood
after a very long stretch of depression
In context ↗ - Sleep problems
Sleeping seems normal, but I have been waking up pretty rough.
In context ↗
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