Long COVID at worst hospitalised and unable to work, much better on a GLP-1 drug
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
I have had so many long haul symptoms
In context ↗ - At worst: Severe
I could barely function day to day
In context ↗ - Now: Much better
I feel better now than I did before I even got covid! ... Still have trouble make sentences and carrying a conversation
- Began after: COVID
covid stole that from me
In context ↗
Read from 9 of their posts and comments; links to the 5 this page draws on
Summary
Lagoon 38985 was ill with long COVID for six years, at worst needing oxygen and hospitalised, unable to work or care for her children. A GLP-1 drug she started at 2.5 mg greatly improved her fatigue and PEM, letting her stop her inflammation medication; progesterone and HRT fixed her sleep. Her physical health is returning but memory and conversation are still slow. She hopes to be fully well.
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What they tried
What they credit
Their words about each treatment
- praying · Not said
What I had been praying for over 6 years was actually almost here.
In context ↗ - zep · Helped a lot
It totally helped my PEM ... My fatigue has improved greatly.
- progesterone · Helped
I found out I was perimenopause so I am now on progesterone and HRT and that has fixed all my sleep issues thankfully!
In context ↗
Approaches: GLP-1 drugs
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 2 steps have no time and sit in story order between the steps around them. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID after COVIDcovid stole that from meIn context ↗ | Moderate | |
| — | needed oxygen, hospitalised, could barely functionWearing oxygen and not knowing if I wanted to even live through it because I was so miserableIn context ↗ | Severe | |
| — | fatigue and PEM largely gone on a GLP-1 drugIt totally helped my PEM ... my entire world is just so much betterIn context ↗ | Mild | Tirzepatide (Mounjaro, Zepbound) |
| 2026-08-24 | physical health returned, thinking still slowStill have trouble make sentences and carrying a conversation with people.In context ↗ | Mild |
Adverse events
- Tirzepatide (Mounjaro, Zepbound)“Just mild. Bit of constipation and had to get that worked out with my foods etc prunes fixed me fine.” In context ↗ Gut side effects
- Tirzepatide (Mounjaro, Zepbound)“And then I had a little nausea but it went away quickly also” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
yes I did have PEM ... The meds from shot have totally taken all those things
In context ↗ - Brain fog
I couldn't remember things or retain what I was told. Still do have a hard time with that.
In context ↗ - Anxiety & low mood
I felt like I was just not worth the trouble and felt so in the way since getting sick
In context ↗ - Sleep problems
that has fixed all my sleep issues thankfully
In context ↗ - Breathlessness
Wearing oxygen and not knowing if I wanted to even live through it
In context ↗
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