Long COVID
Mild → somewhat betterIll 1 year before improving or writing
Long COVID with POTS, near-daily panic attacks and breathlessness, now somewhat better
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Mar 2023
In their words
- Condition: Long COVID
I have been struggling with symptoms of Long COVID since my initial infection at the start of June 2022
In context ↗ - At worst: Mild
I once almost passed out at my office job, when I stood up to walk to the kitchen and my heart rate jumped to 180 BPM
In context ↗ - Now: Somewhat better
I still developed life-altering side effects that only recently have subsidized about halfway
In context ↗ - Began after: COVID
struggling with symptoms of Long COVID since my initial infection at the start of June 2022
Summary
A 19-year-old developed long COVID after a COVID infection in June 2022, with POTS symptoms, near-daily panic attacks, brain fog, 80% smell loss, light sensitivity and constant breathlessness. They worked an office job but almost passed out when their heart rate hit 180 BPM. Symptoms eased about halfway by January 2023, yet by March 2023 breathing and swallowing trouble persisted, with propranolol and PPIs and a barium swallow pending.
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What they tried
Their words about each treatment
- propranolol · Not said
I was able to get prescribed propranolol, which I still take today.
In context ↗ - benadryl · Not said
being given benadryl and sent away
In context ↗ - PPIs · Not said
My primary doctor has me on PPIs temporarily, but I still am having a very very hard time with swallowing and choking.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| June 2022 | COVID infection followed by long COVID symptoms; still working an office jobsince my initial infection at the start of June 2022In context ↗ | Mild |
| January 2023 | symptoms eased about halfwaylife-altering side effects that only recently have subsidized about halfwayIn context ↗ | Mild |
| February 2023 | breathing crises and three ER visits; ruptured ovarian cystI called 911 after I stopped breathing while driving and started to faint at the wheelIn context ↗ | Mild |
| 2023-03-19 | still troubled by breathing and swallowing, on propranolol and PPIs, awaiting barium swallowI still am having a very very hard time with swallowing and choking.In context ↗ | Mild |
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityPOTS & dysautonomia
Their words about their symptoms
- Brain fog
I also developed horrible brain fog, which I typically described as feeling drunk constantly
In context ↗ - POTS & dysautonomia
developed adrenal POTS
In context ↗ - Heart symptoms & palpitations
my heart rate jumped to 180 BPM
In context ↗ - Anxiety & low mood
my preexisting anxiety went from very manageable to devastating, meaning a panic attack almost every day
In context ↗ - Light & noise sensitivity
I became very sensitive to bright lights
In context ↗ - Breathlessness
a subconscious habit of opening my mouth and gulping for air every few minutes or so, which I still do
In context ↗ - Headaches & migraine
extreme congestion, migraines etc.
In context ↗ - Gut problems
I still am having a very very hard time with swallowing and choking
In context ↗