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Long COVID Mild → no benefit

Long COVID with energy swinging 80% to 20%, still not recovered

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
May 2025
In their words
  • Condition: Long COVIDI'm facing similar crap symptoms. In context ↗
  • At worst: MildI go between 80%-20% energy levels for exercise that seems to repeat every two months. In context ↗
  • Now: No benefitas long as I have this shit, I'm digging a hole. In context ↗
  • Began after: COVIDBefore I got on TrT my back seized up hard during initial infection
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

They described fluctuating energy, with exercise capacity swinging between 80% and 20% every couple of months. Weekly dodgeball was tolerable, but a weekend tournament reset the crash cycle. They also had weak legs, foot neuromas and chronic foot, knee and back pain, could not stand still for more than a few minutes, and lay down at home because sitting in a car or desk overwhelmed them. They had not recovered.

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What they tried

Also tried

custom orthotics· HelpedTrT· Not said
Their words about each treatment
  • TrT · Not saidOn TrT I didn't have that muscle soreness but my energy levels tanked again In context ↗
  • custom orthotics · HelpedMy custom orthotics help with the neuroma by keeping my arch In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—initial infection with back spasm and reduced throwing staminaBefore I got on TrT my back seized up hard during initial infection and I could throw 4 times before being gassed In context ↗Mild
2025-05-01still fluctuating; weekly dodgeball tolerated but tournaments reset crash cycleIf I only play weekly dodgeball and nothing else I'm just OK, my strength recovers by the next week. If I have a weekend tournament it feels like I reset the rollercoaster. In context ↗Mild

Adverse events

  • Testosterone“On TrT I didn't have that muscle soreness but my energy levels tanked again.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseIf I have a weekend tournament it feels like I reset the rollercoaster. In context ↗
  • Muscle weaknessmy legs have been weak for over a decade because I couldn't gain muscle In context ↗
  • Pain & fibromyalgiachronic pain in your feet, knees, and back suck joy out of things. In context ↗
  • Neuropathy & tinglingI have neuromas in my feet In context ↗

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