ME/CFS
Mild → no benefitIll for 9 months
Severe fatigue and brain fog with crashes after exercise, managing only by avoiding sport
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 9 months
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
So I believe I have CFS but of course I could be wrong
In context ↗ - At worst: Mild
I can live a relatively normal life
In context ↗ - Now: No benefit
I know how it feels to have these symptoms for days at a time
In context ↗ - Began after: nothing they could name
As for what the trigger was there was nothing specific.
Summary
Mesa 63535, an active runner in their late 30s in the UK, developed severe fatigue, brain fog and upper abdominal pain in November 2022. Crashes of about ten days followed exercise, including a swim and a 3 km run, and they were still working through the days. Doctors' tests were normal and they suspected CFS/ME but had no diagnosis; by August 2023 they could live fairly normally only by avoiding running, swimming and mountain biking.
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What they tried
Also tried
Their words about each treatment
- swimming · Worse
Then one day I went swimming for the first time in a long time and it completely wiped me out for about 10 days.
In context ↗ - low carb diet · Not said
he dismissed them and told me to go on a low carb diet and lose weigh. ... So that’s what I’ve tried to do.
In context ↗ - moderate exercise (walking and moderate weight training) · No change
I’ve kept my exercise to a moderate level, sticking to walking and moderate weight training. I’ve lost a bit of weight and not really had an issue.
In context ↗ - 3km run · Worse
Then I decided to test myself. I did a 3km run ... However 36 hours later the liver/abdomen pain was back and so was the debilitating fatigue and brain fog as well as a more general discomfort in the chest area /overall malaise and it lasted about 10 days
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| November 2022 | fatigue, brain fog and abdominal pain began; kept workingThen in November I started getting pain in my upper right abdomen and severe fatigue and brain fog for days at a timeIn context ↗ | Mild |
| early 2023, after Christmas | wiped out for about 10 days after a swimI went swimming for the first time in a long time and it completely wiped me out for about 10 daysIn context ↗ | Mild |
| 2023, before August | 10-day crash 36 hours after a 3 km runHowever 36 hours later the liver/abdomen pain was back and so was the debilitating fatigue and brain fogIn context ↗ | Mild |
| 2023-08-04 | relatively normal life only if they avoid running, swimming and mountain bikingas long as I don’t do running or swimming or mountain bike riding I can live a relatively normal lifeIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
the pain and fatigue would follow a few days after exertion
In context ↗ - Brain fog
severe fatigue and brain fog for days at a time that seemed to come and go at random
In context ↗ - Pain & fibromyalgia
pain in my upper right abdomen
In context ↗ - Heart symptoms & palpitations
a more general discomfort in the chest area /overall malaise
In context ↗