Long COVID
Moderate → relapsedIll 4 months before improving or writing
Severe Long COVID joint pain eased, then a swollen ankle left her unable to walk
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 months
- Last post
- May 2022
In their words
- Condition: Long COVID
since testing positive in January 2022
In context ↗ - At worst: Moderate
Currently on crutches as I’m unable to walk due to the pain and swelling in my right ankle
In context ↗ - Now: Relapsed
Started to notice less overall pain in all joints and this continued for a week ... Right ankle started to really hurt and became swollen
In context ↗ - Began after: COVID
since testing positive in January 2022
In context ↗
Summary
A 31-year-old woman developed severe joint pain in her fingers, wrists, ankles and toes after testing positive for COVID-19 in January 2022. Over four months she struggled to walk and use her hands, and painkillers gave little relief, and sulfasalazine was stopped as unlikely to help. Joint pain eased in early May, but a swollen ankle left her unable to walk and on crutches, with tests showing no visible inflammation.
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What they tried
Also tried
Their words about each treatment
- extra strength Tylenol · No change
Tried extra strength Tylenol, Advil and Vimovo for the pain (only extra strength Advil helped a bit)
In context ↗ - Advil · Helped
only extra strength Advil helped a bit
In context ↗ - Tramadol · No change
Prescribed Tramadol didn’t help
In context ↗ - Tylenol 3 · Helped
Tylenol 3 only helped a bit and not every time
In context ↗ - Sulfasalazine · Not said
Advised to stop taking Sulfasalazine as it likely wouldn’t help
In context ↗ - Diclofenac · No change
I did try a prescription NSAID called Diclofenac but I still found Advil better.
In context ↗ - Voltaren · No change
I also tried Voltaren but unfortunately, it didn’t seem to help either.
In context ↗ - vaping thc · Helped
The only things that have been helpful so far are extra strength Advil liquid gels and vaping thc
In context ↗ - CBD gummies · No change
tried CBD gummies and thc/CBD vape combo but they didn’t help
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2022 | COVID-19 infection followed by excruciating hip pain and difficulty walkingExcruciating pain developed deep in my hips and I had difficulty walking for 2 days before it went awayIn context ↗ | Mild |
| January 31, 2022 | worst pain ever in fingers, wrists, ankles and toesWoke up with the worst pain I’ve ever felt in my life in my fingers, wrists, ankles and toes.In context ↗ | Mild |
| February-April 2022 | struggled with walking and using handsStruggled doing things including walking, opening the the tops of medications, holding utensils, brushing teeth, etc.In context ↗ | Mild |
| May 2, 2022 | less overall pain in all joints for a weekMay 2: Started to notice less overall pain in all joints and this continued for a weekIn context ↗ | Mild |
| May 8, 2022 | right ankle became painful and swollen after walking around the mallMay 8: Right ankle started to really hurt and became swollen.In context ↗ | Moderate |
| May 16, 2022 | joint pain much reduced but ankle swelling leaves her unable to walk, on crutchesCurrently on crutches as I’m unable to walk due to the pain and swelling in my right ankleIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
severe joint pain in my fingers, wrists, ankles and toes
In context ↗ - Neuropathy & tingling
Hands were tingling and went numb in the shower
In context ↗ - Anxiety & low mood
Feeling hopeless and tired of suffering everyday for 4 months
In context ↗