Barely able to walk for long with ME/CFS, now much better with pacing and aloe vera juice
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
my cfs has turned mild and is somewhat manageable
In context ↗ - At worst: Moderate
I had lost interest in everything and could barely walk for long.
In context ↗ - Now: Much better
my cfs has turned mild and is somewhat manageable
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
A Reddit user in r/cfs described losing interest in everything and being barely able to walk for long in mid-2023. They said forcing themselves to sleep and rest, pacing, and later fresh aloe vera juice reduced their exhaustion, and by October 2023 reported their CFS had turned mild and was somewhat manageable. They also described sudden weakness and near-fainting while walking.
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What they tried
What they credit
Also tried
Their words about each treatment
- forced myself to sleep as much as I could · Helped
I forced myself to sleep as much as I could and the symptoms have reduced.
In context ↗ - pacing · Helped
I feel better when i pace. If i'm tired, i stop.
In context ↗ - treating myself well · Helped
Treating myself well ... These little things add up and have really helped heal.
In context ↗ - fresh aloe vera juice · Helped
I've been taking it the last few days and I'm feeling better.
In context ↗ - chamomile tea · Helped
chamomile tea for restful sleep
In context ↗ - hibiscus and neem tea · Helped
Herb tea: hibiscus and neem tea.
In context ↗ - avoiding black tea and coffee · Helped
Avoid black tea and coffee
In context ↗ - Watching fun and entertaining videos · Helped
Watching fun and entertaining videos.
In context ↗
Approaches: Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| a few weeks before August 2023 | lost interest in everything and could barely walk for longI had lost interest in everything and could barely walk for long.In context ↗ | Moderate | |
| 2023-08-07 | forced sleep and rest reduced symptomsI forced myself to sleep as much as I could and the symptoms have reduced.In context ↗ | Mild | Pacing and the energy envelope |
| 2023-08-18 | exhaustion reduced but not gone after aloe vera juice and daily restI've been taking it the last few days and I'm feeling better.In context ↗ | Mild | |
| 2023-10-04 | CFS turned mild and somewhat manageableI'm greatful that my cfs has turned mild and is somewhat manageableIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
chamomile tea for restful sleep
In context ↗ - Anxiety & low mood
I had lost interest in everything
In context ↗ - Muscle weakness
i suddenly feel weak, almost fainting
In context ↗
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