Managing one task a day with ME/CFS, now recovered after diet and gut treatment
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2024
In their words
- Condition: ME/CFS
My cfs symptoms are way better
In context ↗ - At worst: Moderate
Few years ago i would have to choose between showering or washing the dishes or cooking. And then i had to rest, lying down.
In context ↗ - Now: Recovered
CFS/ME gradually went in remission.
In context ↗
Read from 46 of their posts and comments; links to the 16 this page draws on
Summary
A Reddit user with ME/CFS who a few years ago could manage only one task a day before lying down. They relapsed after two COVID vaccine doses in autumn 2021 and took six months to recover. A gluten-free, dairy-free, refined sugar-free diet with stable blood sugar gave them back half their energy from 2020, and treating a 2022 gastritis and IBS diagnosis with prescription medication, mastic gum and aloe vera, they said their CFS went into remission.
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What they tried
What they credit
Also tried
Their words about each treatment
- gluten free, dairy free, refined sugar free diet keeping blood sugar in range · Helped a lot
Gluten free released me from brain fog. ... basically i started the new diet plan to support my PCOS and got half my energy back.
- therapy · Not said
i did therapy the last year ... My cfs symptoms are way better, but at the same time i have been addressing my intolerances and overall health, so i cannot distinguish.
In context ↗ - singing · Helped
I think my posture got better when i started singing. The breathing exercises, the warming up exercises, the singing per se
In context ↗ - myo-insitol and d chiro inositol and folic acid supplement · Helped
the first time i was on myo-insitol and d chiro inositol and folic acid supplement, the mood swings got way less!
In context ↗ - resting after every task and lying down after standing · Helped
I also saw great difference in overall fatigue when i made it a habit to lie down after standing up, even for a few minutes
In context ↗ - Nexium · Helped a lot
my gastritis diagnosis and medication already gave me more energy and digestion is easier.
In context ↗ - prebiotics · Helped
I too have seen better help from prebiotics, not so much from probiotics.
In context ↗ - walking every day 1,5-2 km · Not said
I would not say it helped me recover, but it helps as exercise helps any human.
In context ↗ - Mastic Gum · Helped
It has also been a month that i also use Mastic Gum and Aloe Vera. ... Aloe Vera and mastic gum help me too.
- Aloe Vera juice · Helped
i am going to start advertising Aloe Vera juice because i feel it helps so much with inflammation.
In context ↗ - simple excercises to stimulate the vagus nerve · Helped
simple excercises to stimulate the vagus nerve help. And putting your legs up the wall for a few minutes
In context ↗ - zinc l carnosine · Not said
I also supplement with zinc l carnosine and l glutamine.
In context ↗ - COVID vaccination as treatment · Worse
First dose was the worst for me too ... For me the first dose was the worst
Approaches: Proton pump inhibitors · Diet · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | daily life limited to one task before lying downFew years ago i would have to choose between showering or washing the dishes or cooking. And then i had to rest, lying down.In context ↗ | Moderate |
| 2020 | diet change gave back half her energyTwo years ago I got half my energy back by changing my diet.In context ↗ | Mild |
| Autumn | relapsed after two COVID vaccine dosesVax were hard on me too. Relapsed.In context ↗ | Moderate |
| late April 2022 | getting better after the vaccine relapseAutumn did the vax 2 doses and started getting better late April.In context ↗ | Mild |
| September 2022 | gastritis and IBS treated, PEM and cognitive symptoms much lessi diagnosed and addressed inflammation in my stomach and my CFS/ME symptoms started to declineIn context ↗ | Mild |
| September 2023 | CFS/ME in remission after treating gastritisI got diagnosed with gastritis late June 2022 and since I started treating it, CFS/ME gradually went in remission.In context ↗ | Recovered |
Adverse events
- COVID vaccination as treatment“First dose was the worst for me too ... For me the first dose was the worst” Made symptoms worse
- COVID vaccination as treatment“Vax were hard on me too. Relapsed. ... It took me 6 months to recover from the vaccine.” Made symptoms worse
- Cutting out sugar (low-sugar diet)“I got a headache for a month because of cutting sugar, but in all areas i started seeing improvement just a week later.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if i walk too much or more vigorously i will crash two days later
In context ↗ - Brain fog
Entirely it left when I finally diagnosed Gastritis and started treating it.
In context ↗ - Gut problems
Two months ago i was finally diagnosed with gastritis and Irritable Bowel Syndrome.
In context ↗ - Sleep problems
I still wake up often, but i rest during my sleep.
In context ↗ - Headaches & migraine
I got a headache for a month because of cutting sugar
In context ↗ - POTS & dysautonomia
unexplained (slight) confusion, irritation and intolerance to standing.
In context ↗ - Light & noise sensitivity
I walk in the sun and the sun doesn't hurt my eyes.
In context ↗
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