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Long COVID Severe → much betterIll 6 months before improving or writingNeeds ongoing treatment

Long COVID fatigue and brain fog, unable to work, much better with diet and antifungals

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
6 months
Last post
Jul 2021
In their words
  • Condition: Long COVIDI'm nearing six months since the infection, and three months of long haul symptoms. In context ↗
  • At worst: SevereI had no energy, no motivation, and I couldn't do anything without feeling awful. In context ↗
  • Now: Much betterI have recovered strength and stamina - I wouldn't call it a full recovery, but being on the better side after being very nearly depleted for so long is a big improvement for me. In context ↗
  • Began after: COVIDI contracted the virus along with my entire family at the same time. In context ↗
  • Says they never had: Temperature regulationI never developed fevers. Not at first nor now.
Read from 35 of their posts and comments; links to the 16 this page draws on

Request to remove this story

Summary

A 31-year-old man in Ecuador contracted COVID-19 around March 2020 and later developed long COVID, with fatigue, brain fog, pain, insomnia and gut symptoms; a relapse left him unable to work. He changed to a cortisol-raising diet and took aloe vera, CoQ10, vitamin D, nicotinamide/niacin and finally antifungal treatment for Candida. He improved gradually, regaining strength and stamina and near-normal digestion, though by July 2021 he still did not call himself fully recovered.

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What they tried

Also tried

melatonin· Helpedvalerian root extract· Helpedpainkillers· Not saidartichoke remedies· Not saidvitamin C, B6 and B12· Not said
Their words about each treatment
  • painkillers · Not saidI had to take painkillers and such to numb it down In context ↗
  • vitamin D · HelpedHigh doses of vitamin D also helped with inflammation. In context ↗
  • cortisol-raising diet (sugar, coffee, white bread and rice, saturated fats; no garlic, ginger or turmeric) · HelpedI inverted my diet from a typical health food diet to a bad diet on purpose. In context ↗
  • artichoke remedies · Not saidI took artichoke remedies for my liver problem In context ↗
  • aloe vera (fresh gel, then powder extract) · Helped a lotTaking aloe vera products specifically is something I can point out to being a game changer. In context ↗
  • melatonin · HelpedDuring the worse bouts of insomnia I did take near 12mg of melatonin to sleep. In context ↗
  • valerian root extract · HelpedI use valerian root extract and melatonin for my nervous system maintenance. In context ↗
  • activated charcoal pills · HelpedTaking activated charcoal pills helped me on that front since they can buffer the bile's toxins. In context ↗
  • CoQ10 · HelpedI think CoQ10 at 200mg is very good. In context ↗
  • ginseng pills · HelpedI rely more on Ginseng pills for the stimulant effect. In context ↗
  • refined beef amino acid pills · HelpedI also took refined beef aminoacid pills and they helped me feel strong when I was at my weakest In context ↗
  • vitamin C, B6 and B12 · Not saidI'm also taking vit D, C, B6, B12, and CoQ10. In context ↗
  • nicotinamide (niacinamide) · HelpedFor two days at least, taking two 500mg pills per day, I have noticed my mood is more stable and calm, and that my sleep is easier and lasts longer. In context ↗
  • niacin · HelpedI only take niacin with a full stomach and no more than 100mg at a time or I get awful flushing rather quickly. In context ↗
  • stopping rice · HelpedMy GI troubles went away after I stopped eating any kind of rice. In context ↗
  • probiotics · Helpedbut probiotics, raw apple cyder vinegar, they do help against candida infections In context ↗
  • azole antifungal pills · Helped a lotever since I switched to treating the Candida issue I have noticed that I do improve at a much faster rate than before In context ↗
  • rest / taking it easy · Helpedmost of the nastiest symptoms have passed thanks to all the rest and supplements In context ↗

Approaches: Amino acids and carnitine · Antifungals · Diet · Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020 (approx.)COVID-19 infection with neurological, fatigue, pain, brain fog and insomnia symptomsI contracted the virus along with my entire family at the same time. In context ↗Moderate
May 2020 (approx.)acute phase ended and he returned to workwe came out of the acute initial phase after a few weeks and I felt much better. I got back to work and everything seemed to be over for a while. In context ↗Near normal
June 2020 (approx.)relapse after severe back pain; bed for days, no energy, could not workEventually after a few days the back pain subsided, but I was left a wreck. It felt as if I had been hit by a truck and everything hurt at once. In context ↗Severe
2020-09-04switched to cortisol-raising dietThe results were almost immediate. Higher levels of awareness and energy, a better mood, better sleep, little to no discernable depression and stress. In context ↗Moderate
2020-10-30initial catastrophic symptoms resolved; lingering weakness and low staminaThe initial catastrophic symptoms have gone away - like the intense pain, joint inflammation, stomach issues, total lack of energy, and brain fog. In context ↗Mild
2020-11-25able to climb a flight of stairs without breathlessnessI can now walk up a flight of stairs without getting tired and short of breath, which would have been impossible just two weeks ago. In context ↗Mild
2020-12-21more physical strength and fewer mood swings on niacin/niacinamideI do feel I have more physical strength, but I don't think my stamina improved that much. In context ↗MildNiacin (vitamin B3)
2021-05-07began antifungal treatment for Candida and improved fasterever since I switched to treating the Candida issue I have noticed that I do improve at a much faster rate than before. In context ↗MildAntifungals (unspecified)
2021-07-07GI near normal and strength/stamina recovered, but not full recoveryI wouldn't call it a full recovery, but being on the better side after being very nearly depleted for so long is a big improvement for me. In context ↗MildAntifungals (unspecified)

Adverse events

  • Niacin (vitamin B3)“I only take niacin with a full stomach and no more than 100mg at a time or I get awful flushing rather quickly.” In context ↗ Side effects

Symptoms mentioned

Their words about their symptoms
  • Loss of smell or tasteI had really bad neurological symptoms, loss of smell and taste In context ↗
  • Brain fogFatigue, difficulty breathing, pain, brain fog, insomnia, deliriums In context ↗
  • Sleep problemsSleep problems improved since a better gut means easier production of melatonin. In context ↗
  • Pain & fibromyalgiaone day I woke up in the middle of the night with tremendous pain in my back In context ↗
  • BreathlessnessI can now walk up a flight of stairs without getting tired and short of breath In context ↗
  • Gut problemsI've been improving noticeably in the GI issues. I can eat better, have less digestive problems, it's very near normal now. In context ↗
  • Muscle weaknessI do still have lingering weakness, low stamina, low strength In context ↗
  • Anxiety & low moodmood swings and depression spells have decreased a lot too In context ↗
  • Mast cell (MCAS) & allergiesSomehow I developed an allergy or aversion to it, my immune system went weird on that one. In context ↗

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