Long COVID
Outcome unclearIll for 4 years
Bedridden with long COVID, still housebound; neuropathy medication eased pain
- Condition
- Long COVID
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 4 years
- Last post
- Apr 2024
In their words
- Condition: Long COVID
Next month marks my 4 years with LC and I still can't walk properly and still homebound.
In context ↗ - At worst: Very severe
7-8 months bedridden (wheel chair, only time I left my bed was for the doc)
In context ↗ - Began after: COVID
March 2020 I almost died and left me numb over most of ,my body and pain.
In context ↗ - Says they never had: Brain fog
Luckily didnt hit brain fog, it all went to nervous system.
Read from 21 of their posts and comments; links to the 11 this page draws on
Summary
They caught COVID-19 in March 2020 and were bedridden for six to eight months with severe pain and numbness from the chest down. A diabetic neuropathy medication ended the constant pain, and over three years they went from a walker to a cane, though they stayed housebound and unable to work. A mid-2023 booster set them back; by early 2024 they could walk short distances with a cane but still had little feeling in their arms and legs.
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What they tried
Also tried
diabetic med· Helpedcoffee· Helpedsmoking or vaping· No changeonline AA· No changepushing myself daily / forced long walks· Worsevaccine / booster· Much worse
Their words about each treatment
- diabetic med · Helped
Doc gave me a diabetic med for (diabetic neuropatyhy?) It ended the 24/7 pain over time and not felt it since thank God.
In context ↗ - vaccine / booster · Much worse
I went for my booster /newish vaccine and my hand skin nujmbuss is as bad as it was first year and I am struggling to stand up.
In context ↗ - smoking or vaping · No change
I've been smoking or vaping the past year or so and notice no effect.
In context ↗ - coffee · Helped
Lots of coffee helps me.
In context ↗ - pushing myself daily / forced long walks · Worse
Yet despite pushing myself daily, no strength ... After that I was just bed ridden for about 3-4 days each.
- online AA · No change
I've tried online AA and nothing seems to help.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| March 2020 | COVID-19; numbness and intense painMarch 2020 I almost died and left me numb over most of ,my body and pain.In context ↗ | Moderate |
| spring 2020, about 2 months in | bedridden for 6-8 months, much of it in severe painI was bedridden for 6-8 months, with 4-5 months of that in severe pain.In context ↗ | Very severe |
| late 2020, over the following months | constant nerve pain endedIt ended the 24/7 pain over time and not felt it since thank God.In context ↗ | Severe |
| 2021, after the first year | out of bed, walking around the house with a walkerit did get a little better after that first year. Enough to get out of the bed and get around the house with a walkerIn context ↗ | Moderate |
| 2023 | down to a cane and holding onto wallsThis year I can just use a cane and hold on to the walls. Progress but not enough to rejoin the world.In context ↗ | Moderate |
| June 2023 | crashed after booster vaccine, numbness and trouble standingFirst tim I've been this bad off in a year or two all after having the vaccine this past Fri.In context ↗ | Severe |
| April 2024 | housebound, short walks with a cane or holding wallsi can also kinda walk now very short distances with just a cane or holding onto a wall or even walk to the car if I need to hit drive-thru.In context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“First tim I've been this bad off in a year or two all after having the vaccine this past Fri.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
After that I was just bed ridden for about 3-4 days each.
In context ↗ - Pain & fibromyalgia
6 months of intense pain
In context ↗ - Muscle weakness
constant muscle weakness too (hard to walk at all)
In context ↗ - Neuropathy & tingling
my arms and legs are still numb
In context ↗ - Temperature regulation
my feet always feel cold despite not being
In context ↗ - Anxiety & low mood
I dont care if I die
In context ↗