House- and bed-bound with ME/CFS for five years, much better after Lyme herbs and peptides
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- At worst: Severe
spending 5 years house/bed bound
In context ↗ - Now: Much better
I can now walk 5km, returned to the gym and continue making improvements
In context ↗
Summary
A UK Reddit user spent five years house- and bed-bound with a diagnosis of CFS/ME/long covid. They tested privately for Lyme and treated with a Lyme herbalist, an eight-week self-managed antibiotic and antiparasitic protocol and peptides. They went from struggling to walk to a restaurant to walking 5km without PEM and back to the gym, though they said more improvement was still needed.
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What they tried
What they credit
Their words about each treatment
- herbal protocol · Helped
Treating with herbs. ... I’ve seen good improvements. Still a way to go!
In context ↗ - antibiotics · Helped
a select combination of antibiotics and anti parasitic drugs and I saw a marked 25% improvement over that 8 week course
In context ↗ - peptides · Helped a lot
I did an 8 week course earlier in the year and they allowed me to get back into the gym after 6 years.
In context ↗
Approaches: Alternative therapies · Antibiotics · Other drugs and medicines · Peptides
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 5 years | house- and bed-bound with a CFS/ME/long covid diagnosisafter spending 5 years house/bed bound with ‘diagnosed’ CFS/ME/long covidIn context ↗ | Severe | |
| — | 25% improvement on an 8-week antibiotic and antiparasitic protocol; walked 5km with no PEMFrom a struggling to walk to the restaurant to walking 5km with no PEM days after.In context ↗ | Mild | |
| earlier in the year | 8-week peptide course; back in the gym after 6 yearsI did an 8 week course earlier in the year and they allowed me to get back into the gym after 6 years.In context ↗ | Mild | Peptides (unspecified) |
| 2026-05-20 | walking 5km and back at the gym, still improvingI’ve seen good improvements. Still a way to go!In context ↗ | Mild |
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