ME/CFS
Severe → somewhat betterIll 10.5 years before improving or writing
Most of day in bed with ME/CFS, somewhat better but crashed after two active days
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10.5 years
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
it seems to have very gradually caused a worsening CFS-like illness
In context ↗ - At worst: Severe
I wasn’t completely bedridden, I could go to the supermarket, feed myself, and wash but that was about it and the rest of the time I spent in bed in my blacked out room
In context ↗ - Now: Somewhat better
I’m generally able to do about 2 social things a week now with the rest of my time spent in bed ... Well now I’m fucked up / having a crash
In context ↗ - Began after: nothing they could name
it seems to have very gradually caused a worsening CFS-like illness
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
This UK user in their mid-30s developed a gradually worsening CFS-like illness over 10-11 years of Prozac for PTSD and OCD, spending most of the day in bed in a dark room and too foggy to finish a STEM PhD. After starting to manage about two social outings a week, they crashed after doing activities two days in a row in December and January, leaving them cutting back and fearing worse.
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What they tried
Also tried
Their words about each treatment
- Prozac/Fluoxetine · Worse
it seems to have very gradually caused a worsening CFS-like illness ... The PEM was significantly worse in the stretch in between where I went back on Prozac
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | gradual CFS-like illness developed over years on Prozacit seems to have very gradually caused a worsening CFS-like illnessIn context ↗ | Mild |
| while doing PhD | in bed in a blacked-out room most of the day; could only manage supermarket, food and washingI wasn’t completely bedridden, I could go to the supermarket, feed myself, and wash but that was about itIn context ↗ | Severe |
| 1-2 years ago | began going out to meetups, about two social things a weekI started dragging myself out of the house to do some meetup type stuff 1-2 years agoIn context ↗ | Moderate |
| December 2025 / January 2026 | crashed after doing activities two days in a rowI did things 2 days in a row once in December and once in January because I was feeling better ... now I’m fucked up / having a crashIn context ↗ | Moderate |
Adverse events
- Fluoxetine (Prozac)“I’m currently on 9 months after coming off it this time. I’ve still got random twitching muscles” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
The PEM was significantly worse in the stretch in between
In context ↗ - Brain fog
my brain has had a really rough time
In context ↗ - Pain & fibromyalgia
all the body parts I did in when I moved over a year ago hurt again now
In context ↗ - Light & noise sensitivity
I spent in bed in my blacked out room with my noise cancelling headphones
In context ↗ - Anxiety & low mood
I think I’m heading for it
In context ↗